I have been on the reduced dose of 400mg since early Feb. So far the side effects for me are very few. Some strange spots on my face that make me look as if I am reverting to teenage! Also got the rash on my scalp. Some bone pain in the evenings, and if I have done too much physical exercise during a day.
The swollen face, puffy eyes and horrid edema I had on Gleevec have gone totally. Lost 4 kg in weight - which I am sure was water retention. The bone pains are really manageable, and the fatigue levels are very much better than before.
On Wed I am up at Kings for a complete visit - ecg bloods etc. Fingers crossed that a blood PCR will show some improvement in BCR/ABL levels. It may be much too soon to tell if Tasi is working for me on the leukaemia level.
All in all I am really pleased to be on this new drug.
ATB
Pennie.
