Sandy
Thanks for the speedy response. I may have used the term PAH wrongly so I've switched to what I experience as the title. I have no medical training except first aid but as retired chemical engineer I like to try to understand the 'processes'! My passions include mountain walking and skiing when I can so I'm very sensitive to loss of oxygen transfer. It is definitely getting worse. I can just manage the small inclines of southern Engalnd and Yorkshire.
I was diagnosed in June last year after an acute attack of giddiness, nausea and sweating, and also onset of deafness in Snowdonia. I had experienced breathlessness on exertion for some months before. Blood samples having been taken by ENT, I was called in by Haematology and after sampling bone marrow the consultant gave my the CML diagnosis. HGB was then 9 and white cells 200. Breathlessness was attributed to anaemia and blood viscosity. Being put onto dasatinib as part of the Sprit II trial the HGB rose to 11.3 over 3 months where it remained at my last clinic in February. White cells had dropped to 10 and BCR-ABL right down. The consultant in February thought the breathlessness could not now be attributed to anaemia, was aware of a possible dasatinib association and wrote to my GP to suggest a consultation with cardiologist. I have another appointment with GP tomorrow and will try to get cardiologist brought forward. There might some confusion with fact that I saw cardiologist in 2010 and had echocardiogram becasue of palpitations and ecktopic heart beats (given fairly clean bill of health then). NHS reorganisation/cuts might also be a factor.
Its good to know there is this support forum as the subject is not one for discussion in the pub.