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sandy craine on 5 December 2013

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Last updated: 5 December 2013

EHA Survey: Access to Medicine
by sandy craine (Dec 5)

You and/or your doctor can help by taking this survey and help EHA improve patients' access to medicine across Europe.

https://www.surveymonkey.com/s/GWH3DK5
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Replies: 0

Last updated: 5 December 2013
Basil from RSA on 25 November 2013

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Replies: 0

Last updated: 25 November 2013

New FaceBook group for CML patients in TFR (Treatment free Remission)
by Basil from RSA (Nov 25)

Hi all,

It's so great to have all these wonderful groups (Forums) for CML patients to turn to for support, information ( whether shared or given ), TLC, etc.

We have all learnt so much
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Replies: 0

Last updated: 25 November 2013
sandy craine on 22 November 2013

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Replies: 0

Last updated: 22 November 2013

EMA press release: CHMP makes recommendations for use of ARIAD's Iclusig (ponatinib)
by sandy craine (Nov 22)

Ariad gets positive CHMP opinion for continued Iclusig availability
The CHMP renders a positive opinion on the continued availability of Ariad's (ARIA) Iclusig for "authorized indications" (various
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Replies: 0

Last updated: 22 November 2013
sandy craine on 12 November 2013

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Replies: 0

Last updated: 12 November 2013

EMA: press release - modification of product information of ponatinib
by sandy craine (Nov 12)

8/11/2013

PRAC updates on the risks of serious vascular occlusive events associated with cancer medicine Iclusig (ponatinib)
Modification of product information under way to include
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Replies: 0

Last updated: 12 November 2013
sandy craine on 1 November 2013

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Replies: 0

Last updated: 1 November 2013

'StemCure': an exciting, new approach to cancer treatment
by sandy craine (Nov 1)

'StemCure': an exciting, new approach to cancer treatment
Professor Claire Lewis is hoping to raise £26,000 for University of Sheffield because this will enable work on StemCure to start asap.
http
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Replies: 0

Last updated: 1 November 2013
RodM on 14 October 2013

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Replies: 0

Last updated: 14 October 2013

Facial Rash
by RodM (Oct 14)

Has anyone on Dasatinib experienced a facial rash spreading on the skin below their nose down towards the cheeks, and below the lower lip?
It's a little odd and seems to be made up of tiny zits, the
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Replies: 0

Last updated: 14 October 2013
David Ryner on 10 October 2013

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Replies: 0

Last updated: 10 October 2013

Update of Cancer Drug Fund- England- Oct 2013
by David Ryner (Oct 10)

As I noted in my post on the NICE committee’s recommendation about bosutinib earlier this week, in England the Cancer Drug Fund (CDF) has received a further two years of funding up to the end
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Replies: 0

Last updated: 10 October 2013
sandy craine on 10 October 2013

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Replies: 0

Last updated: 10 October 2013

US FDA announces hold on studies of Ariad Pharmaceuticals' (ARIA) drug ponatinib (Iclusig)
by sandy craine (Oct 10)

24month follow up from the PACE trial serves to remind patients currently being treated with the full dose (45mg) of ponatinib to speak to your clinicians if you are at all worried or have any
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Replies: 0

Last updated: 10 October 2013
sandy craine on 4 October 2013

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Replies: 0

Last updated: 4 October 2013

TKI therapy: Stratified Medicines
by sandy craine (Oct 4)

Stratified Medicine

A public dialogue for the Technology Strategy Board and Sciencewise:
1. The Basics
2. Patient Perspective.
watch these two videos here:
http://stratifiedmedicine.
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Replies: 0

Last updated: 4 October 2013
sandy craine on 3 October 2013

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Replies: 0

Last updated: 3 October 2013

NICE Final Appraisal Determination: bosutinib (Bosulif)- Oct 2013
by sandy craine (Oct 3)

NICE have published their final recommendation (FAD) on the use of bosutinib for the treatment of adult patients with CML in England.
http://www.nice.org.uk/
As expected the NICE Committee has
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Replies: 0

Last updated: 3 October 2013
sandy craine on 16 August 2013

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Replies: 0

Last updated: 16 August 2013

Access- 2nd Gen TKIs via Cancer Drugs Fund
by sandy craine (Aug 16)

Many of you will probably know that a single national list of drugs accepted into the Cancer Drugs Fund (CDF) for England has replaced the regionally based lists that were operative before the 1st
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Replies: 0

Last updated: 16 August 2013
sandy craine on 14 August 2013

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Replies: 0

Last updated: 14 August 2013

2 new videos uploaded
by sandy craine (Aug 14)

2 interviews with Dr. Michael Mauro - go to video page on left hand menu
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Replies: 0

Last updated: 14 August 2013
sandy craine on 8 August 2013

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Replies: 0

Last updated: 8 August 2013

Jerry Mayfield- Sad News
by sandy craine (Aug 8)

I have just heard that Jerry Mayfield- the founder of http://newcmldrug.com/ died yesterday, apparently from causes unrelated to CML.
Jerry was one of the first - if not the first- patients to be
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Replies: 0

Last updated: 8 August 2013
cousineg on 4 August 2013

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Replies: 0

Last updated: 4 August 2013

The BCR-ABLT315I mutation compromises survival in CML patients
by cousineg (Aug 4)

See The BCR-ABLT315I mutation compromises survival in chronic phase chronic myelogenous leukemia patients resistant to tyrosine kinase inhibitors, in a matched pair analysis

http://www.
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Replies: 0

Last updated: 4 August 2013
cousineg on 30 July 2013

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Replies: 0

Last updated: 30 July 2013

CML on Facebook - private groups and public groups
by cousineg (Jul 30)

See http://www.cmleukemia.com/cml-on-facebook.html
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Replies: 0

Last updated: 30 July 2013
sandy craine on 26 July 2013

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Replies: 0

Last updated: 26 July 2013

Has Carl June Found a Key to Fighting Cancer?
by sandy craine (Jul 26)

Really worth reading this long but fascinating article about Penn State University Researcher's groundbreaking gene therapy for cancer:
"Carl June argued for years that engineered T cells could
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Replies: 0

Last updated: 26 July 2013
sandy craine on 23 July 2013

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Replies: 0

Last updated: 23 July 2013

Nanotechnology- Interesting Article
by sandy craine (Jul 23)

Will nanotechnologies spell an end to reliance on toxic systemic therapies? Should Europe be doing more to encourage this emerging field?
Exploiting a nano-sized breach in cancer's defences: It’s
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Replies: 0

Last updated: 23 July 2013
cousineg on 18 July 2013

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Replies: 0

Last updated: 18 July 2013

Can CML run in a family?
by cousineg (Jul 18)

See this article Despite leukemia, artist continues to create music

http://www.daily-times.com/four_corners-news/ci_23682152/despite-leukemi...
Other link: http://www.cmleukemia.com/cml-
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Replies: 0

Last updated: 18 July 2013
cousineg on 18 July 2013

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Replies: 0

Last updated: 18 July 2013

Kevin Alston, treated for CML, talks about New England Revolution return
by cousineg (Jul 18)

New video - Kevin Alston, treated for CML, talks about New England Revolution return

http://prosoccertalk.nbcsports.com/2013/07/17/video-kevin-alston-treated...
Other link: http://www.
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Replies: 0

Last updated: 18 July 2013
Richard42 on 6 July 2013

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Last updated: 6 July 2013

apologies!
by Richard42 (Jul 6)

First effort moderating and in attempting to delete an annoying spam comment I've deleted a thread about standard blood levels! Apologies to the original poster and whoever it was replied with the
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Replies: 0

Last updated: 6 July 2013