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chrissbb on 8 November 2011

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Last updated: 8 November 2011

Apricot Kernels (Seeds)
by chrissbb (Nov 8)

Hi All,
I hope your all well, I would like to know if anyone has ever taken Apricot Kernels whilst on any of the TKI's ? I,m on Glivec and have heard of a couple of local miraculous effects that
Category: Uncategorised

Replies: 0

Last updated: 8 November 2011
sandy craine on 6 November 2011

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Replies: 0

Last updated: 6 November 2011

1st and 2nd line nilotinib therapy- Case Studies
by sandy craine (Nov 6)

If you are currently being treated with nilotinib as 2nd or 1st line therapy and you are willing to share your experience by taking part in detailed telephone interviews, then please contact me on
Category: Uncategorised

Replies: 0

Last updated: 6 November 2011
cousineg on 29 October 2011

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Replies: 0

Last updated: 29 October 2011

CML - An important date to remember : November 2, 1999
by cousineg (Oct 29)

See The petition
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Replies: 0

Last updated: 29 October 2011
sandy craine on 21 October 2011

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Replies: 0

Last updated: 21 October 2011

Parliamentary Questions- your MP?
by sandy craine (Oct 21)

We are looking for MP's (those in opposition parties) who would be willing to table parliamentary questions. If your local MP comes under this catergory and you are wiling to contact them
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Replies: 0

Last updated: 21 October 2011
sandy craine on 20 October 2011

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Replies: 0

Last updated: 20 October 2011

Extra number of discounted hotel rooms at Parc Thistle
by sandy craine (Oct 20)

I have just heard from Dr. Goringe that there are some extra discounted rooms at the conference hotel. So for those of you who have not been able to secure a discounted booking then you could try
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Replies: 0

Last updated: 20 October 2011
sandy craine on 18 October 2011

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Replies: 0

Last updated: 18 October 2011

Save the NHS
by sandy craine (Oct 18)

Please excuse my posting this here but in the UK we are in danger of losing the NHS we know a love, and if that happens it will have an impact on CML patients and others with life threatening
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Replies: 0

Last updated: 18 October 2011
sandy craine on 17 October 2011

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Replies: 0

Last updated: 17 October 2011

Welcome Nigel
by sandy craine (Oct 17)

Hello Nigel and welcome to this forum. All of us on here are CML patients or family members of people diagnosed with CML. We can answer most questions and if not can point you in the right direction
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Replies: 0

Last updated: 17 October 2011
sandy craine on 11 October 2011

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Replies: 0

Last updated: 11 October 2011

the Challenge and Promise of the Genomic Era
by sandy craine (Oct 11)

ASCO President George Sledge Discusses the Challenge and Promise of the Genomic Era
By Susan Beck | June 13, 2011
Executive Editor,
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Replies: 0

Last updated: 11 October 2011
sandy craine on 10 October 2011

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Replies: 0

Last updated: 10 October 2011

National CML Patient and Carer Seminar-November 12th 2011
by sandy craine (Oct 10)

I contacted Dr Goringe at Cardiff to ask if there would be notification of registration- See his message below.
"Dear Sandy,
We sent out notifications yesterday, so people should be
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Replies: 0

Last updated: 10 October 2011
sandy craine on 8 October 2011

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Replies: 0

Last updated: 8 October 2011

Dasatinib as 1st line in Ph+ALL
by sandy craine (Oct 8)

Dasatinib as First-Line Treatment For Adult Patients With Philadelphia Chromosome-Positive Acute Lymphoblastic Leukemia
Blood. 2011 Sept 19;[Epub Ahead of Print], R Foa, A Vitale, M Vignetti
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Replies: 0

Last updated: 8 October 2011
sandy craine on 4 October 2011

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Replies: 0

Last updated: 4 October 2011

Joanna's Transplant Journal
by sandy craine (Oct 4)

I have just added a link on the blog page to Joanna's transplant journal. Joanna responded intitially very well to dasatinib within the Spirit 2 trial. However, after some time it was discovered
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Replies: 0

Last updated: 4 October 2011
cousineg on 29 September 2011

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Replies: 0

Last updated: 29 September 2011

Talking CML at the conference ‘Bridging the Gap 2011’
by cousineg (Sep 29)

See Talking CML at the conference ‘Bridging the Gap 2011’
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Replies: 0

Last updated: 29 September 2011
cousineg on 27 September 2011

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Replies: 0

Last updated: 27 September 2011

CML and sports
by cousineg (Sep 27)

See these links:
Kareem Abdul-Jabar
Jason Blake
Drew Johnston
Making the Miraculous Happen
Cancer can't hold back Minnesota wakeboarder
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Replies: 0

Last updated: 27 September 2011
sandy craine on 24 September 2011

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Replies: 0

Last updated: 24 September 2011

raising funds
by sandy craine (Sep 24)

Chronic Myeloid Leukaemia Support Group.. raise 50p with one click
http://www.easyfundraising.org.uk/d/b6urv4l/?fbLike=true
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Replies: 0

Last updated: 24 September 2011
sandy craine on 17 September 2011

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Replies: 0

Last updated: 17 September 2011

Cancerous inhibitor of PP2A (CIP2A) at diagnosis of chronic myeloid leukemia is a critical determinant of disease progression.
by sandy craine (Sep 17)

Thanks to Ian Sweet of MPN-net for this link. Sandy
Blood. 2011 Jun 16;117(24):6660-8. Epub 2011 Apr 13.
Cancerous inhibitor of PP2A (CIP2A) at diagnosis of chronic

myeloid leukemia is a
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Replies: 0

Last updated: 17 September 2011
sandy craine on 7 September 2011

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Replies: 0

Last updated: 7 September 2011

Safety and efficacy of bosutinib (SKI-606) in chronic phase PH+CML patients with resistance or intolerant to imatinib
by sandy craine (Sep 7)

Bosutinib, a dual Src/Abl kinase inhibitor, has shown potent activity against chronic myeloid leukemia (CML). This phase I/II study evaluated bosutinib in patients with chronic phase imatinib-
Category: Uncategorised

Replies: 0

Last updated: 7 September 2011
EmChops on 28 August 2011

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Replies: 0

Last updated: 28 August 2011

Bloods dropping again, a question, again, sorry!
by EmChops (Aug 28)

So I wrote last time this happened, to recap, I was on Nilotanib for 8 weeks (Ernst1 clinical trial) then had to stop as my platelets and neutraphils were too low (platelets must not go below 50 and
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Replies: 0

Last updated: 28 August 2011
sandy craine on 27 August 2011

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Replies: 0

Last updated: 27 August 2011

NICE MTA dasatinib, nilotinib and high dose imatinib for imatinib resistant CML
by sandy craine (Aug 27)

We have finished our appeal letter and will send it to NICE within the deadline.-2nd September.
This is quite a difficult process and needs to be entirely within the process as published by
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Replies: 0

Last updated: 27 August 2011
cassidy62 on 27 August 2011

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Replies: 0

Last updated: 27 August 2011

2nd glivec baby!
by cassidy62 (Aug 27)

Hi i havent been on here for awhile, not since the birth of Brihde in 2009, infact since my little girl was born over 2 years ago. I have just had another glivec free successful pregnancy and
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Replies: 0

Last updated: 27 August 2011
Steven D on 26 August 2011

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Replies: 0

Last updated: 26 August 2011

Article online at the Daily Mail
by Steven D (Aug 26)

Hi
I thought this may be of interest
Steven
http://www.dailymail.co.uk/news/article-15039/Breakthrough-leukaemia.html
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Replies: 0

Last updated: 26 August 2011