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Matthew Wilson on 22 December 2009

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Replies: 0

Last updated: 22 December 2009

NICE - letter from MP
by Matthew Wilson (Dec 22)

Hi all,
Sorry for the delay in responding.
I today received a letter from the House of Commons, from David Howarth, MP, Cambridge.
He has written to the Secretary of State for Health and also sent
Category: Uncategorised

Replies: 0

Last updated: 22 December 2009
louisealdridge on 11 December 2009

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Replies: 0

Last updated: 11 December 2009

New entrant- Louise Aldridge
by louisealdridge (Dec 11)

Hi,I have just found this support group ,my husband Malcolm was diagnosed sept05 at the age 34,we discovered his 3 siblings were not a match for BMT and he started on Glivec which intially he
Category: Uncategorised

Replies: 0

Last updated: 11 December 2009
sandy craine on 11 December 2009

Category: Uncategorised

Replies: 0

Last updated: 11 December 2009

ASH 2009
by sandy craine (Dec 11)

Please see under newswire for my fellow advocate Jan Geissler's updates from ASH. Jan has just returned from ASH and will share his updates with us over the coming weeks. There is very good news
Category: Uncategorised

Replies: 0

Last updated: 11 December 2009
sandy craine on 18 December 2009

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Replies: 0

Last updated: 18 December 2009

ASH 2009- overview and Best of..
by sandy craine (Dec 18)

I have uploaded the best of ASH which has been compiled by Jan Geissler. You can find his overview and summary under Newswire and also under Seminars and Conferences.
Sandy
Category: Uncategorised

Replies: 0

Last updated: 18 December 2009
kurt on 6 December 2009

Category: Uncategorised

Replies: 0

Last updated: 6 December 2009

Hyperbaric oxygen therapy
by kurt (Dec 6)

Has anyone tried this? Basically a dive decompression chamber, it apparently helps with various ailments, I was wondering if it would help my bone marrow start producing more red blood cells.
Category: Uncategorised

Replies: 0

Last updated: 6 December 2009
Steven D on 1 December 2009

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Replies: 0

Last updated: 1 December 2009

Email sent to ITN NEWS
by Steven D (Dec 1)

Hi
I have just sent an email to ITN News with regard to a story in tonight's news talking about different survival rates of some cancer patients in some parts of the country to other parts.
I have
Category: Uncategorised

Replies: 0

Last updated: 1 December 2009
vickiep on 29 November 2009

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Replies: 0

Last updated: 29 November 2009

Dasatinib - Insomnia
by vickiep (Nov 29)

Really struggling with this, tried a lot of different stuff and have always managed a good sleep prior to Dasatinib. Didn't start until about 8months in and it's putting my job in jeopardy...Any
Category: Uncategorised

Replies: 0

Last updated: 29 November 2009
Pennie on 28 November 2009

Category: Uncategorised

Replies: 0

Last updated: 28 November 2009

Response from Shadow Sec for Health
by Pennie (Nov 28)

I have heard back from Andrew Lansley. Shadow Sec for Health
'assure you ....entirely pursuing this with the Government at present..... will write to Sec of state to raise issue with him'
Category: Uncategorised

Replies: 0

Last updated: 28 November 2009
Bhiru on 27 November 2009

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Replies: 0

Last updated: 27 November 2009

Needed - Patients near Manchester for a contact at Manchester Evening News re. NICE ACD
by Bhiru (Nov 27)

Bhiru's husband, Jed, here:
My cousin is a journalist. She hasn't lived in the UK for a while, but still has some contacts here. Today she mentioned that she has a friend who works for the
Category: Uncategorised

Replies: 0

Last updated: 27 November 2009
sandy craine on 24 November 2009

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Replies: 0

Last updated: 24 November 2009

Access to nilotinib/dasatinib
by sandy craine (Nov 24)

If anyone is currently being denied access to either 2nd generation drug, please contact me

cmlsupportgroup@gmail.com
Sandy
Category: Uncategorised

Replies: 0

Last updated: 24 November 2009
sue on 20 November 2009

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Replies: 0

Last updated: 20 November 2009

Yorkshire Cancer Network
by sue (Nov 20)

I had alot of help from Yorkshire Cancer Network when I was waiting for my PCT to approve gleevec they might be able to help regarding Dasatinib and Nilotinib,so I spoke to one of their User
Category: Uncategorised

Replies: 0

Last updated: 20 November 2009
Pesty on 18 November 2009

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Replies: 0

Last updated: 18 November 2009

Feverfew
by Pesty (Nov 18)

Hi all
I know from previous posts that there was talk of a trial incorporating Feverfew as it was thought to possibly kill off the leukaemia stem cells.
Does anyone have any information on this?
Category: Uncategorised

Replies: 0

Last updated: 18 November 2009
sandy craine on 23 October 2009

Category: Uncategorised

Replies: 0

Last updated: 23 October 2009

ECPC masterclass- Munich
by sandy craine (Oct 23)

I will be attending this years ECPC Masterclass in Munich over this weekend and then presenting at the EPOSSI 10th workshop on Rare Cancers in Brussels on Monday and Tuesday so I might not be able
Category: Uncategorised

Replies: 0

Last updated: 23 October 2009
sandy craine on 20 October 2009

Category: Uncategorised

Replies: 0

Last updated: 20 October 2009

Cancer Therapy and Infection: take part in a survey
by sandy craine (Oct 20)

Cancer Therapy and Infection: Assessing knowledge and current practices in preventing and managing infections during chemotherapy treatment
PatientView is conducting a new patient survey focusing on
Category: Uncategorised

Replies: 0

Last updated: 20 October 2009
Don Adkins on 18 October 2009

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Replies: 0

Last updated: 18 October 2009

Phase III Dasatinib Trial
by Don Adkins (Oct 18)

Hi Everyone,
I found this article in the LLS news letter. Thought you might find it interesting.
Don
Kantarjian H, Cortes J, Kim DW, Dorlhiac-Llacer P, Pasquini R, DiPersio J, Müller MC, Radich JP
Category: Uncategorised

Replies: 0

Last updated: 18 October 2009
zaviemiller on 12 October 2009

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Replies: 0

Last updated: 12 October 2009

Welma
by zaviemiller (Oct 12)

Hi Welma,
I received your email and tried to repond. Your server rejected my email (welmap@daff.gov.za). Could you please contact me using a different email address or allow my address to get
Category: Uncategorised

Replies: 0

Last updated: 12 October 2009
pratik on 28 September 2009

Category: Uncategorised

Replies: 0

Last updated: 28 September 2009

Search engine optimization
by pratik (Sep 28)

SEO Company India
SEO company in India offers Search engine optimization (SEO) services world wide. SEO experts are purely professional and understand client value. SEO Experts are well qualified
Category: Uncategorised

Replies: 0

Last updated: 28 September 2009
Sneezy123 on 20 September 2009

Category: Uncategorised

Replies: 0

Last updated: 20 September 2009

Resveratrol
by Sneezy123 (Sep 20)

Is there any evidence that reservatrol has a beneficial or adverse effect on CML or Gleevec treatment? ( No anecdotal or non-scientific comments, please ). Thanks, Frank
Category: Uncategorised

Replies: 0

Last updated: 20 September 2009
pat preston on 15 September 2009

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Replies: 0

Last updated: 15 September 2009

Once again from 'The Old Timer Pat'
by pat preston (Sep 15)

Dear Sandy, David, Pennie, Phil and Val (and everyone else who may read this). It did my old heart good to hear from you and many thanks for that.
I was at Nottingham City Hospital yesterday for my
Category: Uncategorised

Replies: 0

Last updated: 15 September 2009
sandy craine on 14 August 2009

Category: Uncategorised

Replies: 0

Last updated: 14 August 2009

Bcr/Abl kinase domain mutations and drug resistance. -Traffic light chart plus PDF link to full article
by sandy craine (Aug 14)

Bcr-Abl kinase domain mutations, drug resistance, and the road to a cure for chronic myeloid leukaemia

Thomas O’Hare,1,2 Christopher A. Eide,2 and Michael W. N. Deininger2 1Howard
Category: Uncategorised

Replies: 0

Last updated: 14 August 2009