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sandy craine on 5 May 2009

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Last updated: 5 May 2009

Anemia Drugs May Raise Death Risk in Cancer Patients
by sandy craine (May 5)

I would like to thank Jan Geissler of Leukaemie-online.de for forwarding this article.

I (we) think it is important to share data from studies that increasingly show that some cancer patients
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Last updated: 5 May 2009
SwanValleySue on 3 May 2009

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Replies: 0

Last updated: 3 May 2009

2 x Clinical Trials (Omacetaxine) commencing in Australia 2009
by SwanValleySue (May 3)

I have copied an article that was in our Local Sunday Times Newspaper that is asking for CML people to start two clinical trials in Australia for Omacetaxine - the Australian contact and number is
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Last updated: 3 May 2009
sandy craine on 6 April 2009

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Last updated: 6 April 2009

DH publishes guidance on NHS patients who wish to pay for additional private care
by sandy craine (Apr 6)

Dear All,
The Dept. of Health have published its guidance on 'top up fees'.

I have put the link under 'Newswire' for those of you who want to read the full guidance document and the background
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Replies: 0

Last updated: 6 April 2009
sandy craine on 2 April 2009

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Last updated: 2 April 2009

Ros Shirran in Yours magazine
by sandy craine (Apr 2)

Just in case some of you are not aware, 'Yours' magazine has a full page feature of Ros Shirran which tells her CML story.

You can link to a PDF of the magazine under 'newsire' (right side
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Replies: 0

Last updated: 2 April 2009
sandy craine on 31 March 2009

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Last updated: 31 March 2009

RARE Cancers Forum Project: Pathways to Diagnosis
by sandy craine (Mar 31)

I am working with Andrew Wilson Webb of RCF, and other members of Cancer 52 (a coalition of rare cancer groups in UK), to help bring forward the RCF's audit on patients experiences of diagnosis (in
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Replies: 0

Last updated: 31 March 2009
SwanValleySue on 11 March 2009

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Last updated: 11 March 2009

Blood Results - Clarification - Information
by SwanValleySue (Mar 11)

Hi guys
I just had my 3 month testing - PCRU continuing which is great.

At times my BCR/abl was either negative 10 or 11 against BCR of 530 000 or 250 000 and this time against 530 000 BCR the
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Replies: 0

Last updated: 11 March 2009
skiinglaketahoe on 9 March 2009

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Last updated: 9 March 2009

Bone Marrow Donation
by skiinglaketahoe (Mar 9)

Hi,
I just saw this article on the BBC web site and thought it was quite interesting.
http://news.bbc.co.uk/1/hi/health/7830969.stm
Susan

www.caringbrige.org/visit/susanleigh
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Replies: 0

Last updated: 9 March 2009
Carol on 11 February 2009

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Replies: 0

Last updated: 11 February 2009

Patient Support Group Meeting At Hammersmith Saturday 16th May 2009
by Carol (Feb 11)

Patient Support Group Meeting At Hammersmith

EVERYONE WELCOME

LEUKAEMIA PATIENTS SUPPORT GROUP

CATHERINE LEWIS CENTRE RECEPTION

HAMMERSMITH HOSPITAL

Du Cane Road
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Replies: 0

Last updated: 11 February 2009
Des on 9 February 2009

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Replies: 0

Last updated: 9 February 2009

travel insurance - again
by Des (Feb 9)

Yet again the dreaded travel insurance raises its head. For the third year running I have been insured by SnowCard Insurance (snowcard.co.uk Tel 01327 262805). For 112.00 They have covered me and
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Replies: 0

Last updated: 9 February 2009
Flora on 18 January 2009

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Last updated: 18 January 2009

appointment
by Flora (Jan 18)

Sandy,

Today I recieved an appointment to go to the Beatson for an hour long appointment on Jan 29 to discuss the transplant - there was a large pook to read included too.

This is new
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Replies: 0

Last updated: 18 January 2009
sandy craine on 5 January 2009

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Last updated: 5 January 2009

Emerging Therapies in CML
by sandy craine (Jan 5)

Webcast from

LeukaemiaInnovations.com on Emerging Therapies in CML.
Summary:

For patients with CML whose disease is not responding to imatinib, also known as Gleevec, there are other
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Replies: 0

Last updated: 5 January 2009
sandy craine on 19 December 2008

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Last updated: 19 December 2008

Template letters to PCT and MP's for those who cannot access dasatinib or nilotinib
by sandy craine (Dec 19)

I have put updated letters on the Essential Reading page on the main menu.
Sandy
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Replies: 0

Last updated: 19 December 2008
cmlblogger on 9 December 2008

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Last updated: 9 December 2008

couple of CML and drug articles
by cmlblogger (Dec 9)

just spotted a couple of articles on the newer drugs for CML (Dasatnib and nilotinib), whihc I thought you might all find interesting
Second-generation Chronic Myelogenous Leukemia Drugs Show
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Replies: 0

Last updated: 9 December 2008
sandy craine on 8 December 2008

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Last updated: 8 December 2008

Support CMLS Group when you shop
by sandy craine (Dec 8)

Please remember to help us by doing your online xmas shopping by signing up to the easyfundraising site... click on the 'donate for free' box at the top right of this page for more information on
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Replies: 0

Last updated: 8 December 2008
Carol on 20 November 2008

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Replies: 0

Last updated: 20 November 2008

6th Patient Support Group Meeting At Hammersmith Saturday 6th December 2008..
by Carol (Nov 20)

6th Patient Support Group Meeting At Hammersmith Saturday 6th December 2008..
EVERYONE WELCOME

LEUKAEMIA PATIENTS SUPPORT GROUP

CATHERINE LEWIS CENTRE RECEPTION

HAMMERSMITH
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Replies: 0

Last updated: 20 November 2008
SwanValleySue on 15 November 2008

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Replies: 0

Last updated: 15 November 2008

Healthy Baby born to Mum: Diagnosed with CML during pregnancy
by SwanValleySue (Nov 15)

Good Afternoon Guys
The Carer e-newsletter from Aust. Leukaemia Foundation highlights CML this month with the front page info and two other pages designated to CML.
For those who read published
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Replies: 0

Last updated: 15 November 2008
sandy craine on 22 October 2008

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Replies: 0

Last updated: 22 October 2008

shop online and raise funds for CML Support Group
by sandy craine (Oct 22)

We're all feeling the pinch financially these days and many charities and good causes are struggling to raise money but with easyfundraising, you can raise funds for the CML Support Group at no
Category: Uncategorised

Replies: 0

Last updated: 22 October 2008
sandy craine on 9 October 2008

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Replies: 0

Last updated: 9 October 2008

Uk CML Patient Seminar Meeting -15th November
by sandy craine (Oct 9)

If you intend to go to the Seminar I strongly advise that you book up sooner rather than later.

The fee for the day... which includes lunch and refreshments (the food is excellent at the RCP)
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Replies: 0

Last updated: 9 October 2008
Carol on 28 September 2008

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Replies: 0

Last updated: 28 September 2008

5th Patient Support Group Meeting At Hammersmith Saturday 11th October 2008..
by Carol (Sep 28)

EVERYONE WELCOME
LEUKAEMIA PATIENTS SUPPORT GROUP
CATHERINE LEWIS CENTRE RECEPTION

HAMMERSMITH HOSPITAL

Du Cane Road

London W12 0HS
SATURDAY 11th October 2008

10am for 10.
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Replies: 0

Last updated: 28 September 2008
hcy0da on 6 September 2008

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Replies: 0

Last updated: 6 September 2008

Health Care Insurance
by hcy0da (Sep 6)

Hi All
I don't know if this is of any use to anyone but I have been able to claim money back from my health care insurance for the bone marrow checks I have had done. The company basically cover any
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Replies: 0

Last updated: 6 September 2008