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sandy craine on 20 December 2013

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Last updated: 20 December 2013

Survey: effects of using internet forums on wellbeing
by sandy craine (Dec 20)

Please take a look at the post (in red) at the top of this page inviting you to take part in a survey conducted by a research student at Sheffield Hallam University. The title of the survey is
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Replies: 0

Last updated: 20 December 2013
sandy craine on 18 December 2013

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Replies: 0

Last updated: 18 December 2013

Ariad Pharmaceuticals - Positive News From Regulators
by sandy craine (Dec 18)

Ariad Pharmaceuticals - Positive News From Regulators

Dec 18 2013, 08:46
Disclosure: I am long ARIA. I wrote this article myself, and it expresses my own opinions. I am not receiving
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Replies: 0

Last updated: 18 December 2013
Basil from RSA on 16 December 2013

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Replies: 0

Last updated: 16 December 2013

Greetings and good wishes over the Festive Season
by Basil from RSA (Dec 16)

Hi all,

This is just a social visit to wish all the members of this forum well over the upcoming Christmas season and new Year. This is normally a time when families gather and celebrate life
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Replies: 0

Last updated: 16 December 2013
sandy craine on 16 December 2013

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Replies: 0

Last updated: 16 December 2013

Patient Day Oxford: Slide presentations
by sandy craine (Dec 16)

Slide presentations from 5 of the expert clinicians have now been uploaded.

see direct links on this page:
http://www.cmlsupport.org.uk/conferences_and_seminars
Sandy
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Replies: 0

Last updated: 16 December 2013
sandy craine on 10 December 2013

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Replies: 0

Last updated: 10 December 2013

Pfizer withdraws Bosulif in Germany
by sandy craine (Dec 10)

Pfizer withdraws Bosulif in Germany
Published on Friday, November 15, 2013

Pfizer Inc. (NYSE:PFE) broke off pricing negotiations with Germany's Statutory Health Insurance Funds Association (
Category: Uncategorised

Replies: 0

Last updated: 10 December 2013
sandy craine on 5 December 2013

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Replies: 0

Last updated: 5 December 2013

EHA Survey: Access to Medicine
by sandy craine (Dec 5)

You and/or your doctor can help by taking this survey and help EHA improve patients' access to medicine across Europe.

https://www.surveymonkey.com/s/GWH3DK5
Category: Uncategorised

Replies: 0

Last updated: 5 December 2013
Basil from RSA on 25 November 2013

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Replies: 0

Last updated: 25 November 2013

New FaceBook group for CML patients in TFR (Treatment free Remission)
by Basil from RSA (Nov 25)

Hi all,

It's so great to have all these wonderful groups (Forums) for CML patients to turn to for support, information ( whether shared or given ), TLC, etc.

We have all learnt so much
Category: Uncategorised

Replies: 0

Last updated: 25 November 2013
sandy craine on 22 November 2013

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Replies: 0

Last updated: 22 November 2013

EMA press release: CHMP makes recommendations for use of ARIAD's Iclusig (ponatinib)
by sandy craine (Nov 22)

Ariad gets positive CHMP opinion for continued Iclusig availability
The CHMP renders a positive opinion on the continued availability of Ariad's (ARIA) Iclusig for "authorized indications" (various
Category: Uncategorised

Replies: 0

Last updated: 22 November 2013
sandy craine on 12 November 2013

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Replies: 0

Last updated: 12 November 2013

EMA: press release - modification of product information of ponatinib
by sandy craine (Nov 12)

8/11/2013

PRAC updates on the risks of serious vascular occlusive events associated with cancer medicine Iclusig (ponatinib)
Modification of product information under way to include
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Replies: 0

Last updated: 12 November 2013
sandy craine on 1 November 2013

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Replies: 0

Last updated: 1 November 2013

'StemCure': an exciting, new approach to cancer treatment
by sandy craine (Nov 1)

'StemCure': an exciting, new approach to cancer treatment
Professor Claire Lewis is hoping to raise £26,000 for University of Sheffield because this will enable work on StemCure to start asap.
http
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Replies: 0

Last updated: 1 November 2013
RodM on 14 October 2013

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Replies: 0

Last updated: 14 October 2013

Facial Rash
by RodM (Oct 14)

Has anyone on Dasatinib experienced a facial rash spreading on the skin below their nose down towards the cheeks, and below the lower lip?
It's a little odd and seems to be made up of tiny zits, the
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Replies: 0

Last updated: 14 October 2013
David Ryner on 10 October 2013

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Replies: 0

Last updated: 10 October 2013

Update of Cancer Drug Fund- England- Oct 2013
by David Ryner (Oct 10)

As I noted in my post on the NICE committee’s recommendation about bosutinib earlier this week, in England the Cancer Drug Fund (CDF) has received a further two years of funding up to the end
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Replies: 0

Last updated: 10 October 2013
sandy craine on 10 October 2013

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Replies: 0

Last updated: 10 October 2013

US FDA announces hold on studies of Ariad Pharmaceuticals' (ARIA) drug ponatinib (Iclusig)
by sandy craine (Oct 10)

24month follow up from the PACE trial serves to remind patients currently being treated with the full dose (45mg) of ponatinib to speak to your clinicians if you are at all worried or have any
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Replies: 0

Last updated: 10 October 2013
sandy craine on 4 October 2013

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Replies: 0

Last updated: 4 October 2013

TKI therapy: Stratified Medicines
by sandy craine (Oct 4)

Stratified Medicine

A public dialogue for the Technology Strategy Board and Sciencewise:
1. The Basics
2. Patient Perspective.
watch these two videos here:
http://stratifiedmedicine.
Category: Uncategorised

Replies: 0

Last updated: 4 October 2013
sandy craine on 3 October 2013

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Replies: 0

Last updated: 3 October 2013

NICE Final Appraisal Determination: bosutinib (Bosulif)- Oct 2013
by sandy craine (Oct 3)

NICE have published their final recommendation (FAD) on the use of bosutinib for the treatment of adult patients with CML in England.
http://www.nice.org.uk/
As expected the NICE Committee has
Category: Uncategorised

Replies: 0

Last updated: 3 October 2013
sandy craine on 16 August 2013

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Replies: 0

Last updated: 16 August 2013

Access- 2nd Gen TKIs via Cancer Drugs Fund
by sandy craine (Aug 16)

Many of you will probably know that a single national list of drugs accepted into the Cancer Drugs Fund (CDF) for England has replaced the regionally based lists that were operative before the 1st
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Replies: 0

Last updated: 16 August 2013
sandy craine on 14 August 2013

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Replies: 0

Last updated: 14 August 2013

2 new videos uploaded
by sandy craine (Aug 14)

2 interviews with Dr. Michael Mauro - go to video page on left hand menu
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Replies: 0

Last updated: 14 August 2013
sandy craine on 8 August 2013

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Replies: 0

Last updated: 8 August 2013

Jerry Mayfield- Sad News
by sandy craine (Aug 8)

I have just heard that Jerry Mayfield- the founder of http://newcmldrug.com/ died yesterday, apparently from causes unrelated to CML.
Jerry was one of the first - if not the first- patients to be
Category: Uncategorised

Replies: 0

Last updated: 8 August 2013
cousineg on 4 August 2013

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Replies: 0

Last updated: 4 August 2013

The BCR-ABLT315I mutation compromises survival in CML patients
by cousineg (Aug 4)

See The BCR-ABLT315I mutation compromises survival in chronic phase chronic myelogenous leukemia patients resistant to tyrosine kinase inhibitors, in a matched pair analysis

http://www.
Category: Uncategorised

Replies: 0

Last updated: 4 August 2013
cousineg on 30 July 2013

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Replies: 0

Last updated: 30 July 2013

CML on Facebook - private groups and public groups
by cousineg (Jul 30)

See http://www.cmleukemia.com/cml-on-facebook.html
Category: Uncategorised

Replies: 0

Last updated: 30 July 2013