You are here

Oncologist says CML doesn't cause pain ????

I am not stable yet I was at 27% the last time I was tested and the last test that McLaren Karmanos Flint did on me the lab they used messed my test up so I don't know what I'm at and my doctor keeps on talking around me and ignoring my request to take another test. I asked him how is it my fault your lab screwed up. Also I'm still in bad bone and joint pain and my ribs are killing me . Guess what he said " He  said CML doesn't cause the pain I'm having and he doesn't know what to tell me" Those were his exact words . I think i need to switch cancer doctors because I've never seen someone so blatantly ignorant and rude as my Oncologist. The side effects from CML and Gleevec both say bone pain and joint pain but he says it has to be something else and he wants to send me over to a general doctor so that this general Doctor can figure out whats wrong with me ? Has anyone ever heard of this before ?

I have been in pain for a while now and I take opiods and want to get off them but I do construction and I don't know what other option there is because my cancer doctor says he doesnt know how to treat pain he says he is an Blood doctor not a pain doctor. I tried Gabapentin but it makes me feel weird and worse than the opiods . I'm trying to find some relief but my Oncologist just acts like he has never treated a cancer patient and he always says he is just a Hematologist not a pain doctor . I feel like he is just ignoring me . I just feel helpless so I'm going to see this General doctor he wants me to see and I'm also making an appointment with a pain management office . I just feel like no one wants to help me and I'm depressed because I can't take the pain and don't live a normal life like he said when I first met him he said your life will be normal. My life is no where near normal .

Return to thread