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Cml groups

Does anybody know if there any cml support groups in the Warwickshire area thanks paul

Hi Paul,

I am sure that there is at least a putative group that is based in the West Mids area. Nigel and others are based there and treated at QE Birmingham. I think QE might have a support nurse as part of the team so it may be worth connecting with others and asking if QE would support a bi-monthly patient meeting?

Nigel is better placed than I to update on the possibilities/contacts.

Sandy

Hi Paul

I'm based in Warwickshire and previously posted about an informal get together of CML patients from the surrounding area. I've been treated from both Stratford Upon Avon and warwick hospitals so would welcome comments on the service provided here.

Regards

Gary

Hi Paul,

I am treated at the QE in Birmingham. I haven’t asked since my Diagnosis last year but have not seen any posters etc up for CML groups at the hospital. I was told the hospital does have support groups generally but not specifically for CML.

On searching a little wider did find a group in East Midlands, see attached link,

http://www.c-w-c.org.uk/chronic-myeloid-leukaemia-cml-support-group_a85....

although never visited. The QE said at the time that if some patients wanted to have a get together they would help. If you want to get in touch please do, think you will need to via contact via Sandy.

Nigel

Hi Gary. I'm treated at Warwick and cannot fault them one bit ,I had lots of problems they did look after well ,I will look into setting up a cml group. All the best paul

Thanks for reply I will contact you later sandy has forwarded your email address thanks paul

Thanks sandy for the email address ,I will look into setting up a group maybe Warwick or Birmingham I'll let you know how I get on thank you paul

Sorry haven't had chance to look into yet haven't been to good,will do shortly,however leukaemia care have a new support group which starts tonight at worcester at the leukaemia care offices.

Thanks for updating on possible midlands meetings. Is the meeting you mention CML specific or more general Leukaemia information?

Best wishes,
Sandy

Sorry for the delay in replying, it is not cml specific.i did go was interesting. Next one in 3months details will be on their website, it gave me an idea how to proceed as I've never been to a support group of any kind regards paul jones

Dear Paul, glad you found the LC meeting of some help. If you need any advice or support about setting up a support group in your area, please contact me privately at cmlsupportgroup@gmail.com and we can discuss possible next steps in setting up a meeting.

CMLSg trustees are very keen to help members do this as we feel this is an area in which there is still an unmet need.

Sandy