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pcr result still undetected after 6 years in TFR

I really wanted to share with you all that it is possible to get TFR for 6 years. I still test twice a year. Any comments on it?

That’s an amazing accomplishment. With all seriousness you are a TFR all-star. Please let us know what your experience was like and anything you do that you think helps to keep you in TFR status.

Kudos!

Thanks. I sent you a private message earlier.

Hi Karinne ... Congratulations on six years TFR!

I'll be testing for 8 years TFR in about three weeks. The surprising thing is that I have only had three undetected tests during my TFR and those all occurred during my first year of TFR when I was testing every three months.

Continued good luck to you,
Buzz

Thank you Buzz. So good to hear about your 8 years coming!!!! How often do you test? I still do every 6 months.

Karinne, I've been testing annually for the last five years although in 2021 I had a blip and retested.

Buzz

Hi Karinne, that's great and hopeful for rest of us!! I wish you always remain Tfr! How long you were on TKIs and undetectable before you tried TFR?

Savvas

Thanks. I took Sprycel for 4 years and was at MR4 after one year. Then I got a massive pleural effusion and had to stop my medication. I never went back on it because my pcr was stable at undetected or detected but too low to quantify.