Hi, its been quite a while since I visited the Forum but today I need some help after visiting my consultant this morning for the results of my 12 month bmb and a general discussion on how my treatment has been going. I was diagnosed 13 months ago and have been on Glivec 800mg a day (Spirit Random Trial)with the normal wonderful side effects that everyone gets at one time or another. I am in a blur because although my specialist has said my bloods and bone marrow are ok he is concerned about other abnormalities and as well as taking a pint of blood also performed another bmb (but without the bone biopsy, thank god!) It sounded to me as if Glivec is not working too well with me anymore and possible options are Glivec and injections, or another Glivec type drug. He also wants my 3 siblings to undertake blood tests - next week if possible - to see if any of them are possible matches for a bmt in the future! I am feeling so well at the moment that I am shocked and upset about this news. I don't have any percentages to give you but I have just e mailed my research nurse to ask her for these in the hope that I can understand what is going on. I am attending the Seminar on 7 October and hope to speak to more people then. Thanks for reading.
Sue Wilson