Hello fellow CML'ers Today is the first day I have posted. I was diagnosed last August and am doing well on Glivec (so far so good anyway!)and after a few months of readjustment and despite tonnes of 'positive thinking' I have found myself really dropping the last few weeks and having only recently moved cities, from London to Liverpool, feeling very isolated. So last night I plucked up the courage to go to the Liverpool support group and I have to say everyone was really warm and welcoming. So thanks to Jane, Linda, Peter, Julie and everyone there for making me feel so at ease and supported. I just really wanted to say that if like me, you are feeling isolated, and you are contemplating going to a support group but can't quite get there, Go! It will hopefully make you feel a whole lot better. Take care, Linda x
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Hi Linda
Pleasure to meet you last night. Congratulations on your first posts!
I can certainly endorse what Linda says about support groups either on-line or local. If you are not sure what might be in your local area try Leukaemia Care or your local hospital. If there isn't one perhaps have the courage to start one up. The Haematology Support Group at the Royal Liverpool University Hospital was started two years ago by a very small band of visionary patients and nursing staff. At the December meeting we had over 70 attendees including professors and nurses from the University. We are very grateful to Linda Boyne and her team and the support of Leukaemia Care and the hospitality of the Liverpool Cancer Support Centre.
Next meeting is on Tuesday 13th March - cheese,wine and nibbles - 21 Aigburth Road Liverpool - All those affected by haematological disorders (patients, family or carers)welcome!
Love this site too - it's been a real Godsend and a huge support to me and so many others. Thank you for everyone involved and for all the patients sharing their stories and words of comfort and support.
Peter X
Peter Miles
Southport UK
dear linda, good to see you posting here at last. i am also really glad to hear that you have made contact with other cml patients in liverpool.
it is great to hear that the liverpool group is so strong and well supported.
it may be a good idea for our site to list support local groups so that new patients can easily make contact.
peter, please send me details so that i can put the groups details - and a short description of the group/time of meetings etc.
and i will compile a list.
we are adding new information nearly every day now.
please look at the video of 3 cml experts talking about advances in cml.... click on the first box under essential reading to watch and hear prof. goldman and drs. stone and talpaz share their thoughts.
hope you are well linda, and are not too homesick ;o)
sandy C ;o)