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Donor Matches

Being without a sibling donor I have a few questions I would be grateful for help with- Is a donor always 100% match? If so what is the difference in effect between a stranger and a sibling? Is a donor always found? How long does it usually take? Is there an age beyond which a BMT is not considered safe?

Our 13 year old has no sibling donor and the register has come up with a 90% matched potential donor. We were told by our Consultant that success rates for 100% sibling donor transplants are about 90% and using this 90% donor would reduce the success rate by about 2%. For children the first line treatment is apparently still to do BMT if there is a fully-matched sibling donor, but they have decided to keep him on Glivec because indications are that he is responding well. This will be reviewed after a year if things continue as they are currently. he was diagnosed last August. Being white caucasian makes finding a donor much more likely than if you have other ethnic background - our lad is mixed race, which is probably why there was not a 100% match on the register. Thank goodness for Glivec and its newer alternatives!! Other people will probably have better info than me, but I thought our experience might be of interest to you.

All the very best
kestrel

I am not myself a CML patient, but my husband Maurice Carter is. We thought it would be good to let you know that he has just undergone a transplant, i.e. 28.09.2006, with an unmatched donor. Our daughter has put a post on the site as he has just had his latest BCR ABL results the CML is undetectable, and he is 100% donor. Maurice did not have a sibling match either, and his donor was an 80% match, and so far all has gone really well. I hope this answers your questions, i.e. the donor does not have to be 100%. With regard to an upper age limit, we do not know what this is/would be. When Maurice was first diagnosed in June 2005 it was thought that a transplant would be out of the question because he was over 50, he was actually 54 at the time of the transplant.....

All the very best
Jacky

Thank you both very much for sharing your experiences, much appreciated
Very Best to you all
Teresa