Dear All
I read with interest the many comments in response to helen's query about CML and working. I wondered if anyone had some info or advice I could use.
I was dx June 06 but we think I had the illness at least 18mths before that. Symptoms at the time of dx extreme tiredness and enlarged spleen. I was put on 400mg Glivec in July 06 but it did not work and so in march 07 began 600mg, but it was not until June that I had a positive PCR. Although I was off work for 7mths I returned in Jan of this year for 3 days a week. The aim is to increase to full time, but I just do not seem to have the energy. in fact since starting the 600mg I have even less energy. I walk the dog each day, but sometimes that seems to be my limit - i have a terrible habit of sitting down for 5mins and waking up 30mins later!!
Will it get better? Work has been very accommadating but they are beginning to twitch that i am still only managing 3 days.
Lin