my mum has cml and I have recentley joined cml support. I wanted to join so I could find out more about it without worrying my mum. please if you could give me any more information it would be well appreciated,
thanks x
You are here
mum
hi again, what are the side effects of cml? i have realised that my mum has night sweats and her colour has changed. she says she is fine but i'd like to know more. i am 11 years old and know one knows i have an acount on this website i think my mum suspects something though! I just want to find out more.
sweet 24
Hi Sweet,
How lucky your Mum is to have you to care about her. The first thing I would say to you is try not to worry too much. The Doctors who look after her will be very good and the drugs which they are treating her with are very effective and much better than the ones they had to use a few years ago.
There are lots of side effects that your Mum could have. The list is very long and some people get some of them while other people get other ones. Most of the side effects wear off after a while but even if they don't then the Doctor can try different drugs which she could find better. The thing you will probably notice most is that your Mum gets very tired a lot. This happens to nearly everyone who has CML and is quite normal.
Like I said try not to worry too much, your Mum is being well looked after and she should be fine.
Kind regards,
Colin
Hi Sweet,
You sound like a very special person to think of doing something like this so you can understand your mum's illness better. Im wondering if your mum realises that you would like to know more about it? Also, if she hasn't had cml for long, perhaps she might find this website helpful too?
This website is used by loads of people who lead busy and energetic lives even though they have cml - they learn how to manage it as well as possible. But the site is great too for days when people with cml or their families feel a bit down - there's always someone to give a bit of support and help you feel like you're not on your own.
Thinking of you and your mum and sending lots of good wishes,
kestrel xx
Hi sweet 24,
i agree with Kestrel that maybe your mum might like to have a look at this site so she realises that she is not alone. It can be very over whelming when first diagnosed and a very big shock especially if there have been no major indications. My son was diagnosed following a blood test because of a swollen arm. The best thing you can do is try to be understanding as your mum will not only be thinking about cml but the effects on her life and all those around her. Please keep in touch with the site and if your mum does want to join as well, i know from personal experience, that she will be made welcome as well. If you have specific problems then chances are someone else will have experienced them as well.
Julie
Hi Sweet 24,
First of all I just want to say hello, and tell you that I think you are very brave to ask questions about your mum's CML. I'm sure mum is very proud of you. I also have CML and have had it for over four and a half years and I am very well. I have a 13 year old son called Chris. I told him about my CML when he was 9 years old, and he found it very worrying for quite some time, even though I was very well. Nowadays, he hardly worries about it at all, because he knows the medical treatment for CML is fantastic. I'm sure mum is in very safe hands, and I hope you can share your feelings together. If you would like to talk to Chris sometime his hotmail adddress is surfsk8@hotmail.co.uk
With very best wishes,
Phil.
Hi Sweet 24,
What a lucky Mum your Mum is to have such a considerate child.
My Son, Aaron was diagnosed when he was 15 years old and Im not sure how much he understood of CML. I know from my own experience that it took a long time to learn all about the different things.
If you can understand the basics then you will be able to look at things a whole lot differently.
If you would like to get in touch with Aaron ( who is now 20) he would be happy to speak with you or e mail you, or msn. He had a bone marrow transplant and is completely well and healthy now.
Much love
Jayne x
I have just showed my parents that I have been on this site my dad was so happy with all the comments and so was my mum i'd like to thank everyone: kestrel, colin, julie, and jayne. thank you so much this has been a great help to me and my family. my mum was diagnosed when i was nine, i didn't know much then but know i know a great deal
THNKYOU SO MUCH
Sweet 24 xxxx