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sandy craine on 25 August 2011

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Last updated: 25 August 2011

Steven- our North London local hero speaks out against NICE FAD ;o)
by sandy craine (Aug 25)

Steven Davies is featured in his local paper The Boreham Wood Times. This is the online version from Tuesday- the journalist is now running a hard copy article with an update.
Well done Steven, nice
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Replies: 0

Last updated: 25 August 2011
Barbs on 19 August 2011

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Replies: 0

Last updated: 19 August 2011

Forum member
by Barbs (Aug 19)

Just seen that I've been a member of this site for 5 years & 1 hour (lol) very precise!
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Replies: 0

Last updated: 19 August 2011
brassman on 19 August 2011

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Replies: 0

Last updated: 19 August 2011

ecstacy?
by brassman (Aug 19)

take a look at this.
http://www.bbc.co.uk/news/health-14572284
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Replies: 0

Last updated: 19 August 2011
Ali Loram on 16 August 2011

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Replies: 0

Last updated: 16 August 2011

DNA/RNA
by Ali Loram (Aug 16)

Hi, I have had two PCR's done and both times they have been unable to extract the rna from the dna. Just wondering if we have anyone with a scientific background that could explain this for me?
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Replies: 0

Last updated: 16 August 2011
sandy craine on 11 August 2011

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Replies: 0

Last updated: 11 August 2011

NICE FAD
by sandy craine (Aug 11)

NICE will publish the FAD (final appraisal determination) for nilotinib, dasatinib and high dose imatinib for NHS use in IM resistant and intolerant CML in all disease phases on their website on
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Replies: 0

Last updated: 11 August 2011
Lyndsey on 9 August 2011

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Replies: 0

Last updated: 9 August 2011

Haemolytic response
by Lyndsey (Aug 9)

As I'm new to all this just wanted reassurance that everything is going to plan. I was diagnosed 4 weeks ago and been on imatanib now for 4 weeks and 4 days and dr said I've met haemolytic response
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Replies: 0

Last updated: 9 August 2011
sandy craine on 7 August 2011

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Replies: 0

Last updated: 7 August 2011

easyfundraising.org.uk- please help raise funds for CMLSg
by sandy craine (Aug 7)

Hi

Did you know you can raise £4.50 for Chronic Myeloid Leukaemia Support Group without spending anything?
It's very easy
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Replies: 0

Last updated: 7 August 2011
sandy craine on 13 July 2011

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Last updated: 13 July 2011

UK CML Patient and Carer day- 2011- Save the date.
by sandy craine (Jul 13)

Dear All... although I am on holiday in Crete- thank you for all your messages urging relaxation ;o)... I felt the urge to update on the UK patient day as I know it is important to many of you.
Dr
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Replies: 0

Last updated: 13 July 2011
sandy craine on 30 June 2011

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Replies: 0

Last updated: 30 June 2011

UK CML Patient Survey- 5 people needed for telephone interviews
by sandy craine (Jun 30)

Research Survey: Management of CML.
First phase will recruit of 5 patients for initial telephone interview, representing a variety of demographics (age, gender, ethnicity etc)

Second phase
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Replies: 0

Last updated: 30 June 2011
sandy craine on 30 June 2011

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Replies: 0

Last updated: 30 June 2011

Using the Web to understand your medical condition
by sandy craine (Jun 30)

Andrew Schorr gives an interesting interview ... Andrew is someone I particularly admire for his use of the internet to help patients- he himself was diagnosed with CLL some years ago and set up the
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Replies: 0

Last updated: 30 June 2011
Steven Davies on 9 June 2011

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Replies: 0

Last updated: 9 June 2011

Granada Reports today
by Steven Davies (Jun 9)

http://www.itv.com/granada/cancer-drug-protest68289/
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Replies: 0

Last updated: 9 June 2011
michael on 9 June 2011

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Replies: 0

Last updated: 9 June 2011

Exjade
by michael (Jun 9)

Anybody taking Exjade and is your PCT funding it?(of interest to people who have lots of blood transfusions)
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Replies: 0

Last updated: 9 June 2011
SwanValleySue on 4 June 2011

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Replies: 0

Last updated: 4 June 2011

Australian CML Survey
by SwanValleySue (Jun 4)

Hi all
I know there are a number of Australians who receive invaluable information from this forum as I do.
The Australian Leukaemia Foundation has launched a CML Client Survey however it is for
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Replies: 0

Last updated: 4 June 2011
sandy craine on 25 May 2011

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Replies: 0

Last updated: 25 May 2011

EUTOS Score is better predictor for progression free survival in CML treated with IM
by sandy craine (May 25)

Predicting complete cytogenetic response and subsequent progression-free survival in 2060 patients with CML on imatinib treatment: the EUTOS score

http://bloodjournal.hematologylibrary.
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Replies: 0

Last updated: 25 May 2011
ni2i on 19 May 2011

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Replies: 0

Last updated: 19 May 2011

CFM radio
by ni2i (May 19)

Just to let everyone know, myself and my cousin have just been interviewed for CFM radio in regards to the NICE campaign. They have asked NICE for comments of which they replied "NO COMMENT
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Replies: 0

Last updated: 19 May 2011
ian hinley on 17 May 2011

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Replies: 0

Last updated: 17 May 2011

New trials - at least someone sees the value of new drugs...
by ian hinley (May 17)

http://www.bbc.co.uk/news/health-13416237
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Replies: 0

Last updated: 17 May 2011
sandy craine on 12 May 2011

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Replies: 0

Last updated: 12 May 2011

OHSU, cancer patients celebrate ten years of Gleevec
by sandy craine (May 12)

Read this article about Brian Druker and imatinib (STI571) ten years on.....

http://www.k103.com/cc-common/news/sections/newsarticle.html?feed=123543&article=8554130#ixzz1M5mPeSLz
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Replies: 0

Last updated: 12 May 2011
sandy craine on 12 May 2011

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Replies: 0

Last updated: 12 May 2011

anyone out there who has been refused access to dasatinib or nilotinib?
by sandy craine (May 12)

Please contact me if you are having problems getting or been refused access to either on of the 2nd generation TKI's- and you are willing to tell your story to national paper

Sandy
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Replies: 0

Last updated: 12 May 2011
sandy craine on 11 May 2011

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Replies: 0

Last updated: 11 May 2011

Parliamentary Questions- suggestion for your MP
by sandy craine (May 11)

Ask your MP to ask a parliamentary question such as.....

To ask the Secretary of State for Health what assessment his Department has made of the extent to which the National Institute for Health
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Replies: 0

Last updated: 11 May 2011
sandy craine on 11 May 2011

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Replies: 0

Last updated: 11 May 2011

email this request to all of your contacts
by sandy craine (May 11)

Please consider sending the following message in an email to all those in your contacts box. I will help to drive traffic to the petition.

Thanks, Sandy
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Replies: 0

Last updated: 11 May 2011