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sandy craine on 8 February 2013

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Last updated: 8 February 2013

"Born Out of Necessity and Data: Conquering Mutation in Leukaemia"
by sandy craine (Feb 8)

Thanks to Greg Stephens for sharing this blog and the article written by Jessica Wapner. You will notice that she has written a book (at last someone has understood this fantastic story) called The
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Last updated: 8 February 2013
Carol on 2 February 2013

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Last updated: 2 February 2013

Hammersmith Patient Support Meeting Saturday 23rd March – 10.30am-1.00pm
by Carol (Feb 2)

Hammersmith Patient Support Meeting

Saturday 23rd March – 10.30am/1.00pm
Patient waiting room

Catherine Lewis Centre

Hammersmith Hospital

DuCane Road

London W12 0HS
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Last updated: 2 February 2013
teddyb on 29 January 2013

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Last updated: 29 January 2013

Dartmouth researchers take novel approach to fighting treatment-resistant chronic myeloid leukemia
by teddyb (Jan 29)

http://geiselmed.dartmouth.edu/news/2013/01/22_kurokawa/
Interesting :)
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Last updated: 29 January 2013
sandy craine on 29 January 2013

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Last updated: 29 January 2013

Article in the 'Indepentent' on Targeted Cancer Treatment
by sandy craine (Jan 29)

'Mary Bacon, 66, from Cumbria, was diagnosed with chronic myeloid leukaemia (CML) in 2008. But targeted treatments mean she can now live a normal life. “Before I was diagnosed, I didn't know
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Last updated: 29 January 2013
sandy craine on 24 January 2013

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Last updated: 24 January 2013

Making Oncology History: Imatinib Pioneer Created His Own Opportunities
by sandy craine (Jan 24)

A great article about Brian Druker, a man who is a hero to many of us ;o)
Making Oncology History: Imatinib Pioneer Created His Own Opportunities - Page 1

Beth Fand Incollingo

Published
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Last updated: 24 January 2013
sandy craine on 22 January 2013

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Last updated: 22 January 2013

Bosutinib: EMA
by sandy craine (Jan 22)

Bosulif (bosutinib)
On 17 January 2013, the Committee for Medicinal Products for Human Use (CHMP) adopted a positive opinion, recommending the granting of a conditional marketing authorisation for
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Last updated: 22 January 2013
sandy craine on 19 January 2013

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Last updated: 19 January 2013

Videos
by sandy craine (Jan 19)

I have uploaded 2 new very interesting Patient Power video interviews:

Is Stopping CML Treatment a Viable Option Now?

An Expert’s Perspective on Changing CML Treatment Options: Moshe
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Replies: 0

Last updated: 19 January 2013
Steven Davies on 16 January 2013

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Last updated: 16 January 2013

A very good friend is running in the London Marathon for CMLSUPPORT
by Steven Davies (Jan 16)

Janine has very kindly offered to run and raise money for CMLSupport. You can support Janine by donating by following the red link at the top of the forum page
It would be nice to get a group
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Last updated: 16 January 2013
sandy craine on 13 January 2013

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Last updated: 13 January 2013

Patient Expert needed for NICE STA:Bosutinib
by sandy craine (Jan 13)

As you know we are consultees on the upcoming NICE appraisal of bosutinib in previously treated CML.

NICE allows us to nominate a 'patient expert' who will be invited to provide a written
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Last updated: 13 January 2013
sandy craine on 8 January 2013

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Last updated: 8 January 2013

You might like to take part
by sandy craine (Jan 8)

Another survey... but might be good to do this one if you have any spare time ;o) It is compiled by Patient Power in partnership with National CML Society (USA). I often post CML related videos from
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Last updated: 8 January 2013
cousineg on 7 January 2013

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Last updated: 7 January 2013

CML and fish oil (videos) - Penn State: Inspiring Collaboration
by cousineg (Jan 7)

Penn State scientists find an inspiring collaboration. Dr. Prabhu, who
specializes in the health benefits of fish oil, and Dr. Paulson, who is
studying the stem cells that cause leukemia,
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Last updated: 7 January 2013
sandy craine on 6 January 2013

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Last updated: 6 January 2013

Update: NICE Single Technology Appraisal of bosutinib- 3rd Gen TKI
by sandy craine (Jan 6)

Bosutinib (Pfizer Ltd):

It is expected that bosutinib will complete its passage through the European Medicines Agency’s (EMA) marketing authorisation process at some point this year. This will
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Last updated: 6 January 2013
sandy craine on 4 January 2013

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Replies: 0

Last updated: 4 January 2013

New Survey: UK CML Patients
by sandy craine (Jan 4)

UK CML patient Survey

This survey has been designed to better understand some of the issues facing CML patients, specifically those living in the UK. The survey is being hosted by Sigma
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Replies: 0

Last updated: 4 January 2013
giora on 22 December 2012

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Last updated: 22 December 2012

ASH Summary from a Patient Perspective
by giora (Dec 22)

Dear All

If you would like to read a summary of the most important points regarding CML that were discussed at the ASH meeting last week in Atlanta, written by 2 CML Patients and advocates,
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Last updated: 22 December 2012
giora on 22 December 2012

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Last updated: 22 December 2012

Last Call to Participate at the CML Adhrence Survey
by giora (Dec 22)

Dear All
I would like to thank everyone who has already answered the Adherence survey

Organized by CML Advocates network, which is a global network of 68 CML

patients Organizations from
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Last updated: 22 December 2012
sandy craine on 22 December 2012

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Last updated: 22 December 2012

Patient Power Video Interview with Greg Stevens-ASH 2012
by sandy craine (Dec 22)

See/hear Greg Stevens of National CML Society (US) give his perspective on this years ASH- go to Video page.
Sandy
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Last updated: 22 December 2012
sandy craine on 21 December 2012

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Last updated: 21 December 2012

Leukemia: Positive Early Results For WT1 DNA Vaccine Clinical Trial
by sandy craine (Dec 21)

Leukemia: Positive Early Results For WT1 DNA Vaccine Clinical Trial

By News Staff | December 7th 2012 12:00 PM
The early results of a trial to treat leukemia with a WT1 DNA vaccine looks
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Replies: 0

Last updated: 21 December 2012
sandy craine on 11 December 2012

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Last updated: 11 December 2012

Ariad Passes Its 12-Month Check-Up -by EP Advantage
by sandy craine (Dec 11)

Ariad Passes Its 12-Month Check-Up

December 10, 2012 by: EP Vantage
Producing solid 12-month data had been billed as the big test for Ariad Pharmaceuticals' (ARIA) ponatinib in drug-resistant
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Last updated: 11 December 2012
sandy craine on 10 December 2012

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Last updated: 10 December 2012

UK Patient Day
by sandy craine (Dec 10)

Please find a PDF of my summary of the day at the top of this page, according to my notes taken at the CML Seminar in Glasgow.
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Replies: 0

Last updated: 10 December 2012
sandy craine on 10 December 2012

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Last updated: 10 December 2012

Summary:2012 National UK CML Patient/Carer Day
by sandy craine (Dec 10)

Please find a summary of the 2012 UK National CML Patient day- according to my notes taken at the CML Seminar in Glasgow,
I hope you find this helpful.
Best wishes Sandy
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Last updated: 10 December 2012