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sandy craine on 10 December 2012

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Last updated: 10 December 2012

Summary:2012 National UK CML Patient/Carer Day
by sandy craine (Dec 10)

Please find a summary of the 2012 UK National CML Patient day- according to my notes taken at the CML Seminar in Glasgow,
I hope you find this helpful.
Best wishes Sandy
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Last updated: 10 December 2012
cousineg on 26 November 2012

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Last updated: 26 November 2012

Novel Agents in CML Therapy:The Tyrosine Kinase Inhibitors and Beyond
by cousineg (Nov 26)

See this article Novel Agents In CML Therapy: Tyrosine Kinase Inhibitors and Beyond

See also these links:
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Last updated: 26 November 2012
sandy craine on 3 December 2012

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Last updated: 3 December 2012

Ponatinib could be the "best of the bunch"- Editorial in NEJM by John Goldman
by sandy craine (Dec 3)

In a group of heavily pretreated patients with Philadelphia (Ph)-chromosome-positive leukemia resistant to currently available tyrosine kinase inhibitors (TKIs), including patients with the BCR-ABL
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Last updated: 3 December 2012
sandy craine on 20 November 2012

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Last updated: 20 November 2012

CML Advocates Net Survey
by sandy craine (Nov 20)

If you have not already done so, please take part in the international survey on adherence in CML.

As some of you know CMLSgroup are co-founders of CMLAdnet and fully support this survey.
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Last updated: 20 November 2012
sandy craine on 6 December 2012

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Last updated: 6 December 2012

NICE will review dasatinib Jan 2013
by sandy craine (Dec 6)

NICE:

The agenda for the Technology Appraisal Committee C meeting for Tuesday 15 January 2013 will be live on the NICE website on Thursday 6 December 2012. The Appraisal Committee will
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Last updated: 6 December 2012
sandy craine on 13 November 2012

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Last updated: 13 November 2012

UK CML Patient Seminar- Glasgow- BBC
by sandy craine (Nov 13)

I have just heard that currently there are 91 people (inc. clinicians) registered to attend the CML patient/carer day in Glasgow this Saturday. If you are considering attending but have not yet
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Last updated: 13 November 2012
sandy craine on 13 November 2012

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Last updated: 13 November 2012

Ponatinib vs imatinib- EPIC Phase 3 clinical trial
by sandy craine (Nov 13)

EPIC lll is not yet open in UK, but is currently recruiting in US, Canada, Germany, Korea and Singapore for Newly diagnosed CML in chronic phase within 6 months of diagnosis and without any prior
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Last updated: 13 November 2012
sandy craine on 13 November 2012

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Last updated: 13 November 2012

Ponatinib: An interesting perspective
by sandy craine (Nov 13)

Some of you might be interested in the following article written by an Independent Stock Investor/advisor.

This is written from the perspective of buying stocks, but I think might give us- as
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Last updated: 13 November 2012
sandy craine on 9 November 2012

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Last updated: 9 November 2012

Novartis: 'Path to Cure'
by sandy craine (Nov 9)

Interesting snip from article in the PharmaLive newsletter-

thanks to Cheryl-Anne for the link.
Sandy
"Tasigna: "Path to Cure" - a potential paradigm shift in CML treatment.

Novartis has
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Last updated: 9 November 2012
Steven Davies on 8 November 2012

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Last updated: 8 November 2012

21st April 2013 Janine running the London Marathon!!!
by Steven Davies (Nov 8)

21st April 2013 is the day the London Marathon takes place.

As you will see from the post in red at the top of the page Janine is going to run in her first marathon for CMLSuport.

I
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Last updated: 8 November 2012
sandy craine on 27 October 2012

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Last updated: 27 October 2012

CML Patient Group- Eire
by sandy craine (Oct 27)

For CML patients based in Eire there is a very useful resource - The Irish CML Patient Group run by Joe Shrieves.

You can contact the group by email: at admin@irishcmlgroup.org

or visit
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Last updated: 27 October 2012
sandy craine on 24 October 2012

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Last updated: 24 October 2012

Calling Patients living in Scotland
by sandy craine (Oct 24)

RE:a potential BBC documentary on issues surround orphan diseases, including rarer cancers, and access to therapies designated as orphan drugs.
The journalist has spoken with Richard W and myself
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Replies: 0

Last updated: 24 October 2012
sandy craine on 21 October 2012

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Last updated: 21 October 2012

Magnesium Oil- more information
by sandy craine (Oct 21)

For those who are/might be interested in learning more about symptoms of low magnesium and how to best supplement with this important mineral, please take a look at the following link to

'
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Last updated: 21 October 2012
sandy craine on 19 October 2012

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Last updated: 19 October 2012

Update on Adherence Survey
by sandy craine (Oct 19)

I was at a meeting this week with other CML Advocates from around the world to discuss the issues surrounding possible barriers that might affect access to a novel TKI therapy.
We also discussed
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Last updated: 19 October 2012
sandy craine on 9 November 2012

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Last updated: 9 November 2012

Rare Disease UK- Survey for Scotland and Wales
by sandy craine (Nov 9)

See Survey page if you would like to take part in Rare Disease UK surveys for patients with rare diseases living in Scotland or Wales.
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Replies: 0

Last updated: 9 November 2012
sandy craine on 9 October 2012

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Last updated: 9 October 2012

SCT- Ali's Caring bridge blog
by sandy craine (Oct 9)

Just to remind those of you who know Ali Lorem that she is starting on her RIC SCT today at Bristol.

Her caringbridge page is on the diary/blog page of this site or you can sign in here
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Last updated: 9 October 2012
sandy craine on 27 September 2012

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Last updated: 27 September 2012

What is My PCR?- update
by sandy craine (Sep 27)

It was exciting to be aware during September 22 that all around the world, survivors, advocates and supporters were launching the PCR campaign as part of their activities. Photos have been coming in
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Last updated: 27 September 2012
cousineg on 25 September 2012

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Last updated: 25 September 2012

Betel leaf may help fight CML
by cousineg (Sep 25)

See Betel leaf may help fight CML

http://www.cmleukemia.com/betel-leaf-may-help-fight-cml.html

An alcoholic extract of the betel leaves may help patients suffering from chronic
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Replies: 0

Last updated: 25 September 2012
sandy craine on 21 September 2012

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Last updated: 21 September 2012

CML Adherence to TKI Therapy Study- Survey now closed
by sandy craine (Sep 21)

As co-founder of CML Advocates Network in 2006, the CML Support Group provided a link to the second part of the CML Adherence Study

The CML Adherence Study Part ll is an online survey being
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Replies: 0

Last updated: 21 September 2012
sandy craine on 20 September 2012

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Last updated: 20 September 2012

"What is MY PCR?" Global Campaign Launched on World CML Awareness Day- 22/9
by sandy craine (Sep 20)

CML Support Group are in partnership with other groups in the global campaign 'What is My PCR?' an initiative set up by the MAX Foundation to encourage patient awareness and wider access to PCR
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Last updated: 20 September 2012