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RodM on 14 September 2012

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Last updated: 14 September 2012

Educating GP's!
by RodM (Sep 14)

Hi
The Guardian article posted by Sandy (thanks!) led me to an interesting thought.
Doctors deal with so many different illnesses: is there anything that we, as patients, could suggest to them next
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Replies: 0

Last updated: 14 September 2012
JeffMowatt on 21 September 2012

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Replies: 0

Last updated: 21 September 2012

Sadako Sasaki and the 1000 cranes
by JeffMowatt (Sep 21)

On this International day of Peace, it seemed relevant to recall the story of a Japanese girl who survived Hiroshima but later developed leukaemia.
There is a Japanese legend, that a wish may be
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Replies: 0

Last updated: 21 September 2012
sandy craine on 10 September 2012

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Replies: 0

Last updated: 10 September 2012

What is my PCR? Join campaign for CML Awareness Day and make a real difference.
by sandy craine (Sep 10)

I now have delivery of the buttons/badges, as well as the PCR FAQ brochure, for this campaign so if anyone would like to wear a badge on 22/09 -CML Awareness Day, then please let me know how many
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Replies: 0

Last updated: 10 September 2012
nigel on 25 August 2012

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Replies: 0

Last updated: 25 August 2012

CML advocates world awareness day - sign up ?
by nigel (Aug 25)

CML advocates web site is something I have come across. They represent groups such as this across the world. A world awareness day for CML is planned 22nd September, eg 9/22. They are asking for us
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Replies: 0

Last updated: 25 August 2012
sharito on 22 August 2012

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Replies: 0

Last updated: 22 August 2012

Insurance
by sharito (Aug 22)

Hi,
I'm just about to buy a flat. Does anyone know of any insurance companies that will cover for accident & sickness /life insurance.
Thanks
Sharon
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Replies: 0

Last updated: 22 August 2012
gizmos mum on 16 August 2012

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Replies: 0

Last updated: 16 August 2012

CML and rash - can anyone advise?
by gizmos mum (Aug 16)

I am a bit worried as i have been reading today about the Philadelphia chromosone, which i thought was unique to CML. I have read today on the McMillan site that sufferers of ALL (Acute
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Replies: 0

Last updated: 16 August 2012
cousineg on 12 August 2012

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Replies: 0

Last updated: 12 August 2012

Can immunotherapy cure leukemia?
by cousineg (Aug 12)

Two new articles about this subject:

Novartis Gets Immune-Cell Cancer Therapy in UPenn Pact

August 6, 2012, Bloomberg

Novartis, Penn to Partner on Cancer Immunotherapies
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Replies: 0

Last updated: 12 August 2012
teddyb on 31 July 2012

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Replies: 0

Last updated: 31 July 2012

Ariad Announces Submission of New Drug Application for Ponatinib to the U.S. Food and Drug Administration
by teddyb (Jul 31)

http://finance.yahoo.com/news/ariad-announces-submission-drug-applicatio...
"ARIAD anticipates approval and commercial launch of ponatinib in the U.S. in the first quarter of 2013."
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Replies: 0

Last updated: 31 July 2012
sandy craine on 30 July 2012

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Replies: 0

Last updated: 30 July 2012

UK National CML Patinet/Carer Seminar-Glasgow November 2012
by sandy craine (Jul 30)

Apparently the UK Patient/Carer Seminar will be in Glasgow later this year. I will update here with details when I have them.
Sandy
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Replies: 0

Last updated: 30 July 2012
sandy craine on 30 July 2012

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Replies: 0

Last updated: 30 July 2012

ARIAD Announces Initiation of EPIC trial for Newly Diagnosed CML
by sandy craine (Jul 30)

Ponatinib will now in phase 3 trials for newly diagnosed CML. See home page for details.
“The start of the EPIC trial represents an important milestone in the development of ponatinib in CML and
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Replies: 0

Last updated: 30 July 2012
sandy craine on 14 July 2012

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Replies: 0

Last updated: 14 July 2012

Clinical Trials-
by sandy craine (Jul 14)

Please find below links to Clinical Trials relevant to CML in the US, UK, EU countries and other regions.
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Replies: 0

Last updated: 14 July 2012
sandy craine on 12 June 2012

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Last updated: 12 June 2012

Imatinib mesylate discontinuation in patients with CML who have received front-line imatinib
by sandy craine (Jun 12)

a b s t r a c t

The aims were to investigate the feasibility of imatinib mesylate (IM) discontinuation in chronic myeloid

leukemia patients who were initially treated with IM and
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Replies: 0

Last updated: 12 June 2012
sandy craine on 12 June 2012

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Replies: 0

Last updated: 12 June 2012

A study of an oral drug for patients with CML is now recruiting patients in the UK.
by sandy craine (Jun 12)

A worldwide study of an oral drug for patients with CML is now open in the UK.

This study is looking at how nilotinib affects CYP enzymes in chronic myeloid leukaemia (CML)

The study
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Replies: 0

Last updated: 12 June 2012
Carol on 21 June 2012

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Replies: 0

Last updated: 21 June 2012

Hammersmith Patient/Carer Support Group will be on Saturday 15th September 2012 and directions
by Carol (Jun 21)

Patient Support Group Meeting at Hammersmith Hospital

EVERYONE WELCOME

LEUKAEMIA PATIENTS SUPPORT GROUP

CATHERINE LEWIS CENTRE RECEPTION

HAMMERSMITH HOSPITAL

Du Cane
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Replies: 0

Last updated: 21 June 2012
sandy craine on 26 May 2012

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Last updated: 26 May 2012

PACE: A pivotal phase II trial of ponatinib in CML & Ph+ALL -resistant/ intolerant to dasatinib/nilotinib or with T315i
by sandy craine (May 26)

ASCO Annual Meeting 2012
PACE: A pivotal phase II trial of ponatinib in patients with CML and Ph+ALL resistant or intolerant to dasatinib or nilotinib, or with the T315I mutation.
Abstract:
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Replies: 0

Last updated: 26 May 2012
sandy craine on 26 May 2012

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Replies: 0

Last updated: 26 May 2012

The expanding options for front-line treatment in patients with newly diagnosed CML
by sandy craine (May 26)

Critical Reviews in Oncology/Hematology

Javier Pinilla-Ibarz, Ian Flinn -

published online 09 April 2012.
Abstract
The past decade has seen remarkable advances in the treatment of
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Replies: 0

Last updated: 26 May 2012
sandy craine on 6 June 2012

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Replies: 0

Last updated: 6 June 2012

Impact of NSAIDS on Imatinib Uptake in CML- ibuprofen should be avoided in combination with imatinib
by sandy craine (Jun 6)

Contrasting Effects of Diclofenac and Ibuprofen on Active Imatinib Uptake Into Leukaemic Cells

Br J Cancer. 2012 May 1;1061772-1778, J Wang, TP Hughes,

CH Kok, VA Saunders, A Frede, K
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Replies: 0

Last updated: 6 June 2012
sandy craine on 14 May 2012

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Replies: 0

Last updated: 14 May 2012

New Horizons in CML conference -Germany
by sandy craine (May 14)

David and I attended the NH CML conference in Munich, Germany this weekend.

Drs. Andreas Hochhaus (Germany), Jorge Cortes (USA), and Delphine Rae (France) were the main speakers with some
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Replies: 0

Last updated: 14 May 2012
sandy craine on 22 May 2012

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Replies: 0

Last updated: 22 May 2012

Managing CML as a Chronic Disease: ASH Education Booklet
by sandy craine (May 22)

I have updated the FAQ page with an interesting article by Dr. Andreas Hochhaus published in the ASH Education Booklet..... go to FAQ page or click on link below.
http://www.cmlsupport.org.uk/
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Replies: 0

Last updated: 22 May 2012
lisad123 on 16 April 2012

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Replies: 0

Last updated: 16 April 2012

Three years on
by lisad123 (Apr 16)

Hello all
Well thought I would pop in and update.

Darren was dx with cml 3 years ago. Still not at magic number of 0.01 but neary at last as at 0.03! Lowest it's been in all the time.
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Replies: 0

Last updated: 16 April 2012