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sandy craine on 31 January 2008

Category: Uncategorised

Replies: 0

Last updated: 31 January 2008

NICE-dasatinib/nilotinib appraisal
by sandy craine (Jan 31)

I have just had a look at the NICE website and see that there have been consultations in December and January about the remit and scope of an appraisal for dasatinib and nilotinib. there is a
Category: Uncategorised

Replies: 0

Last updated: 31 January 2008
sandy craine on 28 November 2007

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Replies: 0

Last updated: 28 November 2007

Tasigna has european approval - media release from Novartis
by sandy craine (Nov 28)

Novartis International AG

Novartis Global Communications

CH-4002 Basel

Switzerland

http://www.novartis.com

1/5

MEDIA RELEASE •

Tasigna® gains European
Category: Uncategorised

Replies: 0

Last updated: 28 November 2007
Elizabeth Rees on 25 November 2007

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Replies: 0

Last updated: 25 November 2007

CML Support Social evening - Edinburgh
by Elizabeth Rees (Nov 25)

Hello Everyone

Firstly thank you so much to all you who attended - you made the evening a great success. I would like to start by thanking Steven Davies for basically being there for me and
Category: Uncategorised

Replies: 0

Last updated: 25 November 2007
Pennie on 21 November 2007

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Replies: 0

Last updated: 21 November 2007

Drug availability in Scotland
by Pennie (Nov 21)

Reading the information about the possibility of new CML drug availability north of the border brought back many memories of the early fight for Gleevec here in UK.
When the first appraisal was due
Category: Uncategorised

Replies: 0

Last updated: 21 November 2007
CherylAnne on 16 November 2007

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Replies: 0

Last updated: 16 November 2007

Folic Acid Question
by CherylAnne (Nov 16)

This is for the person who was asking about Folic Acid and CML.
Additionally there is some new work coming out that shows that prenatal folic acid can help reduc the risk of occurence of childhood
Category: Uncategorised

Replies: 0

Last updated: 16 November 2007
RACHEL HALSALL on 14 November 2007

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Replies: 0

Last updated: 14 November 2007

DASATANIB update
by RACHEL HALSALL (Nov 14)

Hi everyone,
I just wanted to let you all know that Gary started on Dasatanib 4 weeks ago and up to now, has had little to no side effects. Apart from feeling a bit 'fuzzy' from time to time, he is
Category: Uncategorised

Replies: 0

Last updated: 14 November 2007
sandy craine on 12 November 2007

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Replies: 0

Last updated: 12 November 2007

for Paul- re: Sharon's update
by sandy craine (Nov 12)

Sharons Update

new

Submitted by PAUL on Thu, 2007-11-08 17:50.

Sharon is on + 50 today and doing marvellous, even the tiredness is subsiding.ill keep posting and hats of to
Category: Uncategorised

Replies: 0

Last updated: 12 November 2007
Paul Cooke on 24 October 2007

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Replies: 0

Last updated: 24 October 2007

Variable response to Glivec
by Paul Cooke (Oct 24)

It is evident that people vary in their response to Glivec, but there is not presently any way of predicting that variable.

Some work has recently been done in Australia where measurement of
Category: Uncategorised

Replies: 0

Last updated: 24 October 2007
Elizabeth Rees on 13 October 2007

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Replies: 0

Last updated: 13 October 2007

Reminder - CML Seminar in Edinburgh and CML Support Social Evening
by Elizabeth Rees (Oct 13)

Hi everyone

Just to remind you to send those registration forms in for the CML Seminar in Edinburgh and also to sign up for the CML Support social evening on the Friday night.

I will be
Category: Uncategorised

Replies: 0

Last updated: 13 October 2007
sandy craine on 28 September 2007

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Replies: 0

Last updated: 28 September 2007

EMEA committee recommends Tasigna
by sandy craine (Sep 28)

On 20 September 2007 the CHMP

(Committee for Medicinal Products for Human Use)

of the EMEA

(European Medicines Evaluation Agency) adopted a positive opinion towards Tasigna and
Category: Uncategorised

Replies: 0

Last updated: 28 September 2007
sandy craine on 27 September 2007

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Replies: 0

Last updated: 27 September 2007

NICE news to share - reposted from page 2
by sandy craine (Sep 27)

in the light of Rachel's post about access to Dasatinib..see below... i have reposted my message about NICE reviewing the decision to appraise both Dasatinib and Nilotinib....
Sandy
i do not want to
Category: Uncategorised

Replies: 0

Last updated: 27 September 2007
Elizabeth Rees on 14 September 2007

Category: Uncategorised

Replies: 0

Last updated: 14 September 2007

CML Support Social Evening - Edinburgh
by Elizabeth Rees (Sep 14)

CML Support Evening flyer attached.
I have sent this to various Haematology Clinics for display but I would be grateful to any of you who are going to your local clinics before the seminar if you
Category: Uncategorised

Replies: 0

Last updated: 14 September 2007
Belinda Whitting on 6 September 2007

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Replies: 0

Last updated: 6 September 2007

molecular remission
by Belinda Whitting (Sep 6)

hi nancy, firstly i hpoe all is ok with you. i posted in aug asking about molecular remission, too which you very kindly replied. unfortunately when my husband went too the macmillan unit end of
Category: Uncategorised

Replies: 0

Last updated: 6 September 2007
basant on 17 August 2007

Category: Uncategorised

Replies: 0

Last updated: 17 August 2007

Please help
by basant (Aug 17)

What is the normal value in RT PCR qualitative analysis in case of CML if there is no log value known can it be interpreted like that?

Can Gleevec induce myelofibrosis?

What is the cause
Category: Uncategorised

Replies: 0

Last updated: 17 August 2007
zaviemiller on 1 August 2007

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Replies: 0

Last updated: 1 August 2007

Glasgow Aug 16-18
by zaviemiller (Aug 1)

Hi all,
I will be in Glasgow August 16 - 18 and would like to meet any CML or GIST patients in the area. Please email me at zmiller@sympatico.ca so we can arrange a time. Thurday or Saturday evening
Category: Uncategorised

Replies: 0

Last updated: 1 August 2007
Elizabeth Rees on 3 July 2007

Category: Uncategorised

Replies: 0

Last updated: 3 July 2007

Booking form for the UK CML Seminar now on the site
by Elizabeth Rees (Jul 3)

Hi everyone

Just to draw your attention to the booking form and agenda etc. for the UK CML Seminar. Hope to see many of you there.

Elizabeth
Category: Uncategorised

Replies: 0

Last updated: 3 July 2007
Elizabeth Rees on 17 June 2007

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Replies: 0

Last updated: 17 June 2007

Newly diagnosed patient required
by Elizabeth Rees (Jun 17)

Hi everyone

I have been asked to find a newly diagnosed patient, preferably female [we already have some male volunteers - need to balance out] who is on Glivec. This patient would have to
Category: Uncategorised

Replies: 0

Last updated: 17 June 2007
Bram on 6 June 2007

Category: Uncategorised

Replies: 0

Last updated: 6 June 2007

Please try and help with Sisters sponsored Abseil for Leukemia research.
by Bram (Jun 6)

Hello,

I am planning to complete an abseil off the Tyne Bridge in Newcastle to raise money for Leukaemia Research. Please dig deep and sponsor me online; I would really appreciate your support
Category: Uncategorised

Replies: 0

Last updated: 6 June 2007
samantha on 30 May 2007

Category: Uncategorised

Replies: 0

Last updated: 30 May 2007

Adrian Sudbury who has CML and AML
by samantha (May 30)

Adrian Sudbury has been a reporter for both the Huddersfield Express and Chronicle Series and the Huddersfield Examiner. In November 2006 the 25-year-old was promoted to digital journalist,
Category: Uncategorised

Replies: 0

Last updated: 30 May 2007
Jayne on 15 May 2007

Category: Uncategorised

Replies: 0

Last updated: 15 May 2007

Message for Dawn
by Jayne (May 15)

I just wanted to let Dawn know that I have posted below. The post is quite low down so just didnt want her to miss it.
I hope everyone is doing well, I do read regularly however as Steve mentioned
Category: Uncategorised

Replies: 0

Last updated: 15 May 2007