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sandy craine on 14 May 2007

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Last updated: 14 May 2007

UK patient seminar day -date
by sandy craine (May 14)

the UK Patient Seminar day will be held in Ediburgh on 24th November this year. when i receive more detailed infromation i will update.
i have been asked for ideas on ways we can move forward with
Category: Uncategorised

Replies: 0

Last updated: 14 May 2007
Elle on 10 May 2007

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Replies: 0

Last updated: 10 May 2007

Dasatinib
by Elle (May 10)

Hi All
Was at Glasgow Royal today to see Proff Hollyoake. Remarkable lady!!! I'm going to be starting 100 mgs of Dasatinib as soon as my local health service and consultants get everything organised
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Replies: 0

Last updated: 10 May 2007
Elizabeth Rees on 9 May 2007

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Replies: 0

Last updated: 9 May 2007

Anyone had babies with frozen sperm, egg or embryo ? Research request
by Elizabeth Rees (May 9)

I am posting below request from a journalist. Anyone interested please get in touch with her directly.

Elizabeth
I am a journalist who mostly writes for the Daily Mail but also the Daily
Category: Uncategorised

Replies: 0

Last updated: 9 May 2007
pat preston on 24 April 2007

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Replies: 0

Last updated: 24 April 2007

For the attention of 'Skipd' - see your article on 17th April please.
by pat preston (Apr 24)

Am posting this here to draw your attention to the article you posted on 17th April. Am hoping you will be able to help Judy. Best wishes, Pat
Category: Uncategorised

Replies: 0

Last updated: 24 April 2007
Elizabeth Rees on 19 April 2007

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Replies: 0

Last updated: 19 April 2007

Spring Issue - MD Anderson Newsletter
by Elizabeth Rees (Apr 19)

MD Anderson Spring 2007 Newsletter
This is the spring issue of the MD Anderson newsletter. Well worth a read. All the latest on new treatments for CML under trial etc...

Elizabeth
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Replies: 0

Last updated: 19 April 2007
sandy craine on 18 April 2007

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Replies: 0

Last updated: 18 April 2007

All Party Parliamentary Group on Cancer - sign petition
by sandy craine (Apr 18)

http://www.appg-cancer.org.uk/home.htm

New Vision For Cancer
The All Party Parliamentary Group on Cancer has launched its new vision for the future of cancer services.
Thank you for supporting
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Replies: 0

Last updated: 18 April 2007
skiinglaketahoe on 6 April 2007

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Replies: 0

Last updated: 6 April 2007

AMN
by skiinglaketahoe (Apr 6)

Hi
I am going to the Hammersmith to be assessed for going on the AMN trial.
Is anyone else on AMN and how is it going for them?
I have been through glivec and dasatanib already!
regards

Susan
Category: Uncategorised

Replies: 0

Last updated: 6 April 2007
zaviemiller on 6 April 2007

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Replies: 0

Last updated: 6 April 2007

New Zero Club Member - Sarah
by zaviemiller (Apr 6)

Sorry I missed you.
Y A H O O O !!! Y I P P E E E !!!

Number 1051 in the Zero Club

Zavie
Sarah, please write me at zmiller@sympatico.ca
Submitted by Swede on Mon, 2007-03-26 22:15.
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Replies: 0

Last updated: 6 April 2007
CherylAnne on 5 April 2007

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Replies: 0

Last updated: 5 April 2007

CML topic on Talk Radio this weekend - Listen in and Call In !
by CherylAnne (Apr 5)

Hello All,
Even though it is the holiday weekend, there will be a few programs for CMLers on the radio this weekend. Please listen in if you can, and I would encourage you to phone in with your
Category: Uncategorised

Replies: 0

Last updated: 5 April 2007
mariansy on 26 March 2007

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Replies: 0

Last updated: 26 March 2007

Race for Life
by mariansy (Mar 26)

Hi all
I hope all are well - I am currently waiting for my latest PCR results to coem back.
Meanwhile could I ask you to please consider visiting our Race for Life site. I ran/walked the course last
Category: Uncategorised

Replies: 0

Last updated: 26 March 2007
Elizabeth Rees on 26 March 2007

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Replies: 0

Last updated: 26 March 2007

CML Survey - thank you
by Elizabeth Rees (Mar 26)

Sophie has asked me to thank all of you who volunteered and took part in the CML Survey. The survey is now closed and for those of you who volunteered after the numbers where reached, thank you and
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Replies: 0

Last updated: 26 March 2007
cmlblogger on 19 March 2007

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Replies: 0

Last updated: 19 March 2007

Thankyou to the lady I met at Hammersmith last Wednesday
by cmlblogger (Mar 19)

Just a quick hello (first post) and a thankyou to the lady - sorry forgot your name - we met in the waiting room at Hammersmith last wednesday.
It was great to talk to someone else in the same boat
Category: Uncategorised

Replies: 0

Last updated: 19 March 2007
Elizabeth Rees on 17 March 2007

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Replies: 0

Last updated: 17 March 2007

Skip Duffie - 29 yrs CML Survivor !
by Elizabeth Rees (Mar 17)

I thought I would alert you to this amazing man and his fight with CML. He was diagnosed in 1978 before BMTs and Glivec etc.. Please read his inspiring story on

Skip Living with CML

I
Category: Uncategorised

Replies: 0

Last updated: 17 March 2007
sandy craine on 16 March 2007

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Replies: 0

Last updated: 16 March 2007

ENACT sites open in UK
by sandy craine (Mar 16)

there are now 4 trial centres open and recruiting patients for Nilotinib (Tasigna).
Gen.Infirmary, Leeds;

The Royal, Liverpool;

Hammersmith, London.

University Hospital of Wales,
Category: Uncategorised

Replies: 0

Last updated: 16 March 2007
Elizabeth Rees on 8 March 2007

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Replies: 0

Last updated: 8 March 2007

Research Survey Request - Please help !
by Elizabeth Rees (Mar 8)

Please find below a request from a market research agency. I have completed the interview on the phone today and it is really easy. Sophie needs about 30 participants and you get rewarded with £25
Category: Uncategorised

Replies: 0

Last updated: 8 March 2007
Elizabeth Rees on 8 March 2007

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Replies: 0

Last updated: 8 March 2007

Susan Dickerson
by Elizabeth Rees (Mar 8)

Sue, can you please email me on erees@hotmail.com I'd like to run something past you. Tried your hotmail but it was returned.

Thanks.

Elizabeth
Category: Uncategorised

Replies: 0

Last updated: 8 March 2007
pat preston on 7 March 2007

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Replies: 0

Last updated: 7 March 2007

Pat's Fundraising Project.
by pat preston (Mar 7)

On behalf of the trustees and advisory panel of CML Support Group UK, I would like to say
a BIG THANKYOU to The Volunteer 'BUCKET SWINGERS'
please see the home page for more details about our
Category: Uncategorised

Replies: 0

Last updated: 7 March 2007
Elizabeth Rees on 17 February 2007

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Replies: 0

Last updated: 17 February 2007

Clinical Care Options - Myelodysplastic Syndromes, Acute & Chronic Leukemias
by Elizabeth Rees (Feb 17)

This is a slide presentation. You have to click through MDS, AML and CLL before you get to CML.

Describe the role of novel, targeted therapies and transplant strategies in the management of
Category: Uncategorised

Replies: 0

Last updated: 17 February 2007
sandy craine on 8 February 2007

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Replies: 0

Last updated: 8 February 2007

specialised subject discussion page
by sandy craine (Feb 8)

just to alert you all to a new page we have created which will enable the continuation of a very populat discussion thread started before xmas...

this topic was so popular we decided to keep
Category: Uncategorised

Replies: 0

Last updated: 8 February 2007
Elizabeth Rees on 6 February 2007

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Replies: 0

Last updated: 6 February 2007

Skydive to raise funds for Leukaemia Research
by Elizabeth Rees (Feb 6)

The daughter of our friends Tony and Mary is doing a sponsored skydive to raise funds for the British Heart Foundation and Leukaemia Research.

Please give her your support.

It's very
Category: Uncategorised

Replies: 0

Last updated: 6 February 2007