Sorry I missed you.
Y A H O O O !!! Y I P P E E E !!!
Number 1051 in the Zero Club
Zavie
Sarah, please write me at zmiller@sympatico.ca
Submitted by Swede on Mon, 2007-03-26 22:15.
Hi Brian
Welcome to the site.
I was diagnosed a month or so before you and was interested to see your post as I am also on the SPIRIT trial with the Glivec and weekly interferon injections. Are you on the full weekly dose? I'd got up to 180 ug per week for a few weeks but at the moment I'm off the interferon as I was in hospital last month with a bad infection and haven't yet got back up to speed with all my meds. I've also been off work for the last month or so.
Apart from getting infections, I also have tiredness and have to balance the Glivec with domperidone and immodium. I'm also on steroids as the Glivec seems to give me a rash, and the steroids in turn are then are giving me osteopenia!
On the plus side my consultant seems to think the combination of Glivec and Interferon might have contributed to my PCR results dropping from 14% at diagnosis to 0.003% at 6 months, so it seems to be worth perservering, despite the side effects. There are times of course, though when I think Glivec alone might be a better bet! Good luck with your treatment and do keep posting.
Best wishes,
Sarah