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Steven Davies on 16 January 2013

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Replies: 0

Last updated: 16 January 2013

A very good friend is running in the London Marathon for CMLSUPPORT
by Steven Davies (Jan 16)

Janine has very kindly offered to run and raise money for CMLSupport. You can support Janine by donating by following the red link at the top of the forum page
It would be nice to get a group
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Replies: 0

Last updated: 16 January 2013
sandy craine on 13 January 2013

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Replies: 0

Last updated: 13 January 2013

Patient Expert needed for NICE STA:Bosutinib
by sandy craine (Jan 13)

As you know we are consultees on the upcoming NICE appraisal of bosutinib in previously treated CML.

NICE allows us to nominate a 'patient expert' who will be invited to provide a written
Category: Uncategorised

Replies: 0

Last updated: 13 January 2013
sandy craine on 8 January 2013

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Replies: 0

Last updated: 8 January 2013

You might like to take part
by sandy craine (Jan 8)

Another survey... but might be good to do this one if you have any spare time ;o) It is compiled by Patient Power in partnership with National CML Society (USA). I often post CML related videos from
Category: Uncategorised

Replies: 0

Last updated: 8 January 2013
cousineg on 7 January 2013

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Replies: 0

Last updated: 7 January 2013

CML and fish oil (videos) - Penn State: Inspiring Collaboration
by cousineg (Jan 7)

Penn State scientists find an inspiring collaboration. Dr. Prabhu, who
specializes in the health benefits of fish oil, and Dr. Paulson, who is
studying the stem cells that cause leukemia,
Category: Uncategorised

Replies: 0

Last updated: 7 January 2013
sandy craine on 6 January 2013

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Replies: 0

Last updated: 6 January 2013

Update: NICE Single Technology Appraisal of bosutinib- 3rd Gen TKI
by sandy craine (Jan 6)

Bosutinib (Pfizer Ltd):

It is expected that bosutinib will complete its passage through the European Medicines Agency’s (EMA) marketing authorisation process at some point this year. This will
Category: Uncategorised

Replies: 0

Last updated: 6 January 2013
sandy craine on 4 January 2013

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Replies: 0

Last updated: 4 January 2013

New Survey: UK CML Patients
by sandy craine (Jan 4)

UK CML patient Survey

This survey has been designed to better understand some of the issues facing CML patients, specifically those living in the UK. The survey is being hosted by Sigma
Category: Uncategorised

Replies: 0

Last updated: 4 January 2013
giora on 22 December 2012

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Replies: 0

Last updated: 22 December 2012

ASH Summary from a Patient Perspective
by giora (Dec 22)

Dear All

If you would like to read a summary of the most important points regarding CML that were discussed at the ASH meeting last week in Atlanta, written by 2 CML Patients and advocates,
Category: Uncategorised

Replies: 0

Last updated: 22 December 2012
giora on 22 December 2012

Category: Uncategorised

Replies: 0

Last updated: 22 December 2012

Last Call to Participate at the CML Adhrence Survey
by giora (Dec 22)

Dear All
I would like to thank everyone who has already answered the Adherence survey

Organized by CML Advocates network, which is a global network of 68 CML

patients Organizations from
Category: Uncategorised

Replies: 0

Last updated: 22 December 2012
sandy craine on 22 December 2012

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Replies: 0

Last updated: 22 December 2012

Patient Power Video Interview with Greg Stevens-ASH 2012
by sandy craine (Dec 22)

See/hear Greg Stevens of National CML Society (US) give his perspective on this years ASH- go to Video page.
Sandy
Category: Uncategorised

Replies: 0

Last updated: 22 December 2012
sandy craine on 21 December 2012

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Replies: 0

Last updated: 21 December 2012

Leukemia: Positive Early Results For WT1 DNA Vaccine Clinical Trial
by sandy craine (Dec 21)

Leukemia: Positive Early Results For WT1 DNA Vaccine Clinical Trial

By News Staff | December 7th 2012 12:00 PM
The early results of a trial to treat leukemia with a WT1 DNA vaccine looks
Category: Uncategorised

Replies: 0

Last updated: 21 December 2012
sandy craine on 11 December 2012

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Replies: 0

Last updated: 11 December 2012

Ariad Passes Its 12-Month Check-Up -by EP Advantage
by sandy craine (Dec 11)

Ariad Passes Its 12-Month Check-Up

December 10, 2012 by: EP Vantage
Producing solid 12-month data had been billed as the big test for Ariad Pharmaceuticals' (ARIA) ponatinib in drug-resistant
Category: Uncategorised

Replies: 0

Last updated: 11 December 2012
sandy craine on 10 December 2012

Category: Uncategorised

Replies: 0

Last updated: 10 December 2012

UK Patient Day
by sandy craine (Dec 10)

Please find a PDF of my summary of the day at the top of this page, according to my notes taken at the CML Seminar in Glasgow.
Category: Uncategorised

Replies: 0

Last updated: 10 December 2012
sandy craine on 10 December 2012

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Replies: 0

Last updated: 10 December 2012

Summary:2012 National UK CML Patient/Carer Day
by sandy craine (Dec 10)

Please find a summary of the 2012 UK National CML Patient day- according to my notes taken at the CML Seminar in Glasgow,
I hope you find this helpful.
Best wishes Sandy
Category: Uncategorised

Replies: 0

Last updated: 10 December 2012
cousineg on 26 November 2012

Category: Uncategorised

Replies: 0

Last updated: 26 November 2012

Novel Agents in CML Therapy:The Tyrosine Kinase Inhibitors and Beyond
by cousineg (Nov 26)

See this article Novel Agents In CML Therapy: Tyrosine Kinase Inhibitors and Beyond

See also these links:
Category: Uncategorised

Replies: 0

Last updated: 26 November 2012
sandy craine on 3 December 2012

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Replies: 0

Last updated: 3 December 2012

Ponatinib could be the "best of the bunch"- Editorial in NEJM by John Goldman
by sandy craine (Dec 3)

In a group of heavily pretreated patients with Philadelphia (Ph)-chromosome-positive leukemia resistant to currently available tyrosine kinase inhibitors (TKIs), including patients with the BCR-ABL
Category: Uncategorised

Replies: 0

Last updated: 3 December 2012
sandy craine on 20 November 2012

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Replies: 0

Last updated: 20 November 2012

CML Advocates Net Survey
by sandy craine (Nov 20)

If you have not already done so, please take part in the international survey on adherence in CML.

As some of you know CMLSgroup are co-founders of CMLAdnet and fully support this survey.
Category: Uncategorised

Replies: 0

Last updated: 20 November 2012
sandy craine on 6 December 2012

Category: Uncategorised

Replies: 0

Last updated: 6 December 2012

NICE will review dasatinib Jan 2013
by sandy craine (Dec 6)

NICE:

The agenda for the Technology Appraisal Committee C meeting for Tuesday 15 January 2013 will be live on the NICE website on Thursday 6 December 2012. The Appraisal Committee will
Category: Uncategorised

Replies: 0

Last updated: 6 December 2012
sandy craine on 13 November 2012

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Replies: 0

Last updated: 13 November 2012

UK CML Patient Seminar- Glasgow- BBC
by sandy craine (Nov 13)

I have just heard that currently there are 91 people (inc. clinicians) registered to attend the CML patient/carer day in Glasgow this Saturday. If you are considering attending but have not yet
Category: Uncategorised

Replies: 0

Last updated: 13 November 2012
sandy craine on 13 November 2012

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Replies: 0

Last updated: 13 November 2012

Ponatinib vs imatinib- EPIC Phase 3 clinical trial
by sandy craine (Nov 13)

EPIC lll is not yet open in UK, but is currently recruiting in US, Canada, Germany, Korea and Singapore for Newly diagnosed CML in chronic phase within 6 months of diagnosis and without any prior
Category: Uncategorised

Replies: 0

Last updated: 13 November 2012
sandy craine on 13 November 2012

Category: Uncategorised

Replies: 0

Last updated: 13 November 2012

Ponatinib: An interesting perspective
by sandy craine (Nov 13)

Some of you might be interested in the following article written by an Independent Stock Investor/advisor.

This is written from the perspective of buying stocks, but I think might give us- as
Category: Uncategorised

Replies: 0

Last updated: 13 November 2012