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sandy craine on 9 November 2012

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Last updated: 9 November 2012

Novartis: 'Path to Cure'
by sandy craine (Nov 9)

Interesting snip from article in the PharmaLive newsletter-

thanks to Cheryl-Anne for the link.
Sandy
"Tasigna: "Path to Cure" - a potential paradigm shift in CML treatment.

Novartis has
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Last updated: 9 November 2012
Steven Davies on 8 November 2012

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Last updated: 8 November 2012

21st April 2013 Janine running the London Marathon!!!
by Steven Davies (Nov 8)

21st April 2013 is the day the London Marathon takes place.

As you will see from the post in red at the top of the page Janine is going to run in her first marathon for CMLSuport.

I
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Last updated: 8 November 2012
sandy craine on 27 October 2012

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Last updated: 27 October 2012

CML Patient Group- Eire
by sandy craine (Oct 27)

For CML patients based in Eire there is a very useful resource - The Irish CML Patient Group run by Joe Shrieves.

You can contact the group by email: at admin@irishcmlgroup.org

or visit
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Replies: 0

Last updated: 27 October 2012
sandy craine on 24 October 2012

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Last updated: 24 October 2012

Calling Patients living in Scotland
by sandy craine (Oct 24)

RE:a potential BBC documentary on issues surround orphan diseases, including rarer cancers, and access to therapies designated as orphan drugs.
The journalist has spoken with Richard W and myself
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Replies: 0

Last updated: 24 October 2012
sandy craine on 21 October 2012

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Last updated: 21 October 2012

Magnesium Oil- more information
by sandy craine (Oct 21)

For those who are/might be interested in learning more about symptoms of low magnesium and how to best supplement with this important mineral, please take a look at the following link to

'
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Last updated: 21 October 2012
sandy craine on 19 October 2012

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Last updated: 19 October 2012

Update on Adherence Survey
by sandy craine (Oct 19)

I was at a meeting this week with other CML Advocates from around the world to discuss the issues surrounding possible barriers that might affect access to a novel TKI therapy.
We also discussed
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Replies: 0

Last updated: 19 October 2012
sandy craine on 9 November 2012

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Last updated: 9 November 2012

Rare Disease UK- Survey for Scotland and Wales
by sandy craine (Nov 9)

See Survey page if you would like to take part in Rare Disease UK surveys for patients with rare diseases living in Scotland or Wales.
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Last updated: 9 November 2012
sandy craine on 9 October 2012

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Last updated: 9 October 2012

SCT- Ali's Caring bridge blog
by sandy craine (Oct 9)

Just to remind those of you who know Ali Lorem that she is starting on her RIC SCT today at Bristol.

Her caringbridge page is on the diary/blog page of this site or you can sign in here
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Last updated: 9 October 2012
sandy craine on 27 September 2012

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Last updated: 27 September 2012

What is My PCR?- update
by sandy craine (Sep 27)

It was exciting to be aware during September 22 that all around the world, survivors, advocates and supporters were launching the PCR campaign as part of their activities. Photos have been coming in
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Replies: 0

Last updated: 27 September 2012
cousineg on 25 September 2012

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Last updated: 25 September 2012

Betel leaf may help fight CML
by cousineg (Sep 25)

See Betel leaf may help fight CML

http://www.cmleukemia.com/betel-leaf-may-help-fight-cml.html

An alcoholic extract of the betel leaves may help patients suffering from chronic
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Replies: 0

Last updated: 25 September 2012
sandy craine on 21 September 2012

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Last updated: 21 September 2012

CML Adherence to TKI Therapy Study- Survey now closed
by sandy craine (Sep 21)

As co-founder of CML Advocates Network in 2006, the CML Support Group provided a link to the second part of the CML Adherence Study

The CML Adherence Study Part ll is an online survey being
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Replies: 0

Last updated: 21 September 2012
sandy craine on 20 September 2012

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Last updated: 20 September 2012

"What is MY PCR?" Global Campaign Launched on World CML Awareness Day- 22/9
by sandy craine (Sep 20)

CML Support Group are in partnership with other groups in the global campaign 'What is My PCR?' an initiative set up by the MAX Foundation to encourage patient awareness and wider access to PCR
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Replies: 0

Last updated: 20 September 2012
RodM on 14 September 2012

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Last updated: 14 September 2012

Educating GP's!
by RodM (Sep 14)

Hi
The Guardian article posted by Sandy (thanks!) led me to an interesting thought.
Doctors deal with so many different illnesses: is there anything that we, as patients, could suggest to them next
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Replies: 0

Last updated: 14 September 2012
JeffMowatt on 21 September 2012

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Replies: 0

Last updated: 21 September 2012

Sadako Sasaki and the 1000 cranes
by JeffMowatt (Sep 21)

On this International day of Peace, it seemed relevant to recall the story of a Japanese girl who survived Hiroshima but later developed leukaemia.
There is a Japanese legend, that a wish may be
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Last updated: 21 September 2012
sandy craine on 10 September 2012

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Last updated: 10 September 2012

What is my PCR? Join campaign for CML Awareness Day and make a real difference.
by sandy craine (Sep 10)

I now have delivery of the buttons/badges, as well as the PCR FAQ brochure, for this campaign so if anyone would like to wear a badge on 22/09 -CML Awareness Day, then please let me know how many
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Replies: 0

Last updated: 10 September 2012
nigel on 25 August 2012

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Last updated: 25 August 2012

CML advocates world awareness day - sign up ?
by nigel (Aug 25)

CML advocates web site is something I have come across. They represent groups such as this across the world. A world awareness day for CML is planned 22nd September, eg 9/22. They are asking for us
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Last updated: 25 August 2012
sharito on 22 August 2012

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Last updated: 22 August 2012

Insurance
by sharito (Aug 22)

Hi,
I'm just about to buy a flat. Does anyone know of any insurance companies that will cover for accident & sickness /life insurance.
Thanks
Sharon
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Replies: 0

Last updated: 22 August 2012
gizmos mum on 16 August 2012

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Last updated: 16 August 2012

CML and rash - can anyone advise?
by gizmos mum (Aug 16)

I am a bit worried as i have been reading today about the Philadelphia chromosone, which i thought was unique to CML. I have read today on the McMillan site that sufferers of ALL (Acute
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Replies: 0

Last updated: 16 August 2012
cousineg on 12 August 2012

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Last updated: 12 August 2012

Can immunotherapy cure leukemia?
by cousineg (Aug 12)

Two new articles about this subject:

Novartis Gets Immune-Cell Cancer Therapy in UPenn Pact

August 6, 2012, Bloomberg

Novartis, Penn to Partner on Cancer Immunotherapies
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Replies: 0

Last updated: 12 August 2012
teddyb on 31 July 2012

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Last updated: 31 July 2012

Ariad Announces Submission of New Drug Application for Ponatinib to the U.S. Food and Drug Administration
by teddyb (Jul 31)

http://finance.yahoo.com/news/ariad-announces-submission-drug-applicatio...
"ARIAD anticipates approval and commercial launch of ponatinib in the U.S. in the first quarter of 2013."
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Replies: 0

Last updated: 31 July 2012