GVHD reversed by extracorporeal photopheresis-treated cells.

New RCF report reveals striking postcode lottery in the chances of having an exceptional request for cancer treatment approved
Monday, August 11, 2008

Rarer Cancers Forum carried out an audit of the policies and processes used by PCTs to determine exceptional funding requests. The audit found that:

This webcast is an excellent backgrounder and will explain about the monitoring tests you should expect to have.

Press Release:

Leukemia Patient Groups call for improved access to cancer treatment

Baveno (Italy) 18 August 2008 · More than 50 organisations supporting patients with chronic myeloid leukaemia have signed the "Baveno CML Declaration" to call for improved access to cancer treatment and better adherence to international treatment guidelines.

John Carvel,
social affairs editor The Guardian, 11/08/08

A postcode lottery in cancer care was revealed yesterday in returns under the Freedom of Information Act showing where in England patients are most likely to be refused innovative drugs that could extend their lives.

Hosted by Dr Ian Gibson MP and the Rarer Cancers Forum
Friday, July 25, 2008

Report on the Parliamentary Summit now available on the Rarer Cancer Forum website

....here

YOUR PATIENT'S RIGHT TO TREATMENT,
written by Peter Telford

Your Patient's Right to Treatment: Applying for NHS Exceptional Funding for Treatment
This 32-page booklet was written by a barrister, Peter Telford. It was launched at

How complete is “complete” molecular response in imatinib-treated chronic myeloid leukemia?

PETITION FOR BETTER AWARENESS ABOUT BONE MARROW DONATION

ADRIAN Sudbury is a 26-year-old journalist who has battled two forms of leukaemia for the past 18 months. His treatment included a bone marrow transplant. Sadly for him, it failed and he has been given weeks to live. There are 7,000 people out there waiting for a transplant right now. Adrian is using his final weeks to raise awareness of the need for more people to register as bone marrow donors. He wants better education in schools, colleges and other education institutions about how to become a donor and why it is important. This system is in place in Germany – a country with one of the fullest donor registers. Adrian wants the Government to require educational institutions to commit to including these issues in either the curriculum or pastoral care programme. If you agree, please sign your name and help support a brave man in his campaign.

Britain's health service is spending half as much on cancer drugs as some other European countries

April 2008
Speaking at the European Breast Cancer Conference in Berlin, Professor Mike Richards, the national cancer director, said that the Health Service is spending around half as much per head on cancer drugs as some other European countries. Figures showed Britain spent £76 per head in a year compared with £143 in Germany and £121 in France.