Hello all, I wanted to join and get plugged in to the group. I was diagnosed on 12/17. My original bloodwork that came back with high white blood cell counts was at the end of November when I went in for bloodwork for my annual physical. I am a firefighter in central Texas and the department requires them yearly to stay fit for duty. After a few weeks, I completed the bone marrow biopsy and additional bloodwork. This lead the the diagnosis in mid December.
I started Sprycel on January 1st. I have found this forum to be one of the best (if not, the best) on questions and answers with explications. As a result to some of the information I read here, I decided to take Sprycel in the evening. I feel it has been beneficial in making it through the headaches. I am 43 so I expected that the side effects wouldn’t be bad. I have had headaches, fatigue, and puffiness around my eyes. I am not so sure if this is from the medication as it could be from the lack of sleep over the past few days.
I have read many of Scuba’s posts on fasting. A few details about myself and the changes I have made since late November... I quit caffeine, I stopped drinking (drank about a 12 pack a week), I have gone 90% whole foods plant based. I have done plant based before but never had a reason to stick to it. I have fasted before as well. My longest fast was water only for 17 days. Most people ask me if water only included vitamins, tea or black coffee. In my case, when I fast, it is actually water only. I have done juice fasts as well which were around a week or so.
All this leads me to some questions which I hope the community can help with. Has anyone come across studies related to CML/fasting or CML/supplements that can assist with TKI treatment?
I am thankful to be part of the group although it is about a disease I certainly didn’t expect. The past 6 weeks have been a roller coaster of emotions and thoughts. That being said, I hit things head on, eyes open and square shoulders. I am an all or nothing, kill or be killed personality. It’s just the way I was built. I hope I have something to offer the group as my journey unfolds.
Thanks again to those that have set this site up and let me be a part of those who are here.