As co-founder of CML Advocates Network in 2006, the CML Support Group provided a link to the second part of the CML Adherence Study
The CML Adherence Study Part ll is an online survey being conducted in 12 languages: English, Spanish, German, French, Italian, Portuguese, Finnish, Dutch, Czech, Hebrew, Polish and Russian.
This Survey has now closed. I would like to thank all those who responded to the survey.... see below for a breakdown of the numbers from each country.
I understand from Giora that the analysis will start in January 2013, with 3 goals: to better understand the drivers of non-adherence of CML patients and regional and cultural influences, to identify effective tools that will help different segments of the CML patients to improve their compliance to take their medication, and to write a scientific paper about this unique research done by patients e.g. for publication either at the EHA congress or in a scientific journal.
Thanks again to all members of this forum who took part.
Sandy
Total responses = 2151
Afghanistan 19
Albania 1
Algeria 1
Argentina 44
Australia 42
Austria 13
Belarus 1
Belgium 8
Bosnia and Herzegovina 2
Brazil 2
Bulgaria 3
Canada 9
Central African Republic 2
Chile 1
China 4
Colombia 117
Costa Rica 12
Croatia 1
Cyprus 2
Czech Republic 52
Denmark 4
Ecuador 2
Estonia 1
Finland 64
France 135
Germany 246
Greece 2
Guatemala 21
Hong Kong 4
Hungary 1
India 40
Indonesia 1
Ireland 4
Israel 89
Italy 231
Japan 10
Kazakhstan 9
Kenya 4
Latvia 1
Lebanon 30
Lithuania 2
Luxembourg 2
Malaysia 26
Mexico 43
Montenegro 1
Morocco 2
Nepal 1
Netherlands 115
New Zealand 24
Nigeria 3
Norway 3
Other 8
Pakistan 3
Panama 1
Paraguay 1
Peru 2
Philippines 78
Poland 45
Portugal 6
Romania 5
Russian Federation 84
Serbia 50
Singapore 7
Slovakia 18
Slovenia 70
South Africa 8
Spain 16
Switzerland 17
Thailand 73
The former Yugoslav Republic of Macedonia 1
Tunisia 1
Turkey 2
Uganda 1
Ukraine 21
United Kingdom 103
United Republic of Tanzania 1
United States of America 126
Venezuela (Bolivarian Republic of) 44
Viet Nam 1
Zimbabwe 1
Total 2151