The manufacturer of dasatinib (Sprycel) are developing an internal employee awareness campaign that will feature the experiences of patients with CML. Their aim is to develop a ‘life story’ about a patient and their disease and how they have coped with it.
The ‘We Work For’ theme will help employees identify with real patients.
The campaign will develop posters, photos, videos of patients (named, or anonymous if they prefer) talking about CML - what it was like to be diagnosed with the disease, how they cope with daily living tasks, their unmet medical needs and/or their hopes and fears when being entered into a clinical trial of a new medicine. The materials would only be used internally within our organisation to bring about a better understanding of the disease and how it affects the individual.
If you are a UK patient currently treated with dasatinib and would be willing to help educate others by sharing your story, please email me at cmlsupportgroup@gmail.com and I will give you more detail of what is involved.
Sandy