I was diagnosed last year with Lupus and just 3 months ago CML. I had never heard of this before and was shocked that I was diagnosed with it. I kept telling my Primary NP that I just didn't feel well and they kept trying to diagnose me Bonnie my NP said I am not giving up I will find out what is wrong I promise, then when my white cells came back so high she said I think its time to send you to the Oncologist I think you have Leukemia. I am blessed to have this group of Doctors and NP. I was not by myself I had my cousin with me every step of the way and every appointment we both cried. I am on Gleevec now 400 mg a day and after just one month my white cells dropped down to 5,000 wow couldn't believe it. I am still getting iron treatments weekly now going into my 6th week because my iron is still not going up. I will now have to be on iron and the Gleevec the rest of my life. The Gleevec is $11,000.00 a month for 30 pills. Right now Pharmaceutical Company is supplying me with it until I can get some help from the state. I find it so hard to believe I have to worry about this every month. As you can see I have been diagnosed with a variety of medical issues all through blood work or biopsy. I have no idea why but it seems to be a lot of muscle and blood issues. I don't feel to bad right now just really tired and lots of muscle and joint pain. I am blessed to have the opportunity to have the Gleevec for the CML.
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CML, Lupus, sojrens, FM, Luckoclastic Vasculitis and microsidic anemia
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Hi, I am sorry you have so many issues to deal with as well as CML. As you are in the US you might find the following organisation of some help with how you can source financial support for your monthly treatment bills.... in particular with therapy for CML. I am sure if you contact them you will find benefit from their advice http://www.nationalcmlsociety.org/
Meanwhile, I am sure your response to imatinib (Glivec/Gleevec)will continue.
Sandy