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Living with cml

Hi everyone,
I was diagnosed with chronic myeloid leukaemia in August 2018 was put on distinib, had a lot of side effects eyes swollen and ears, blurry vision , Moody , what else have I got to look forward too ?

Hello. Have you're side effects gotten better and are you meeting milestones? If you are then possibly reduced dose may help.

Hi, I was on 100mg , was shaking all the time, then a month later the dose was dropped off to 50mg, the doctor says I'll get some side effects but I didn't think my eyes would get swollen, the doctor said my body is making to much salt, blood results seem to be going in the right direction tho...