My daughter 24 was diagnosed with CML last 2 weeks ago not sick just went for a blood test for women problems. She is in Australia and is an Australian. We are still waiting on the Prescription for the nilotnib to come through. I have been reading a lot as you can imagine about the side effect. Are they as bad as I read on line? I live in Hong kong with my husband and other daughter. We are looking into into treatment in Hong Kong does any body have any contact or information about cases or groups their.
thanks all it has been a total shock to all of us flying by the seat of our pants at the moment trying to catch up.