Hello, spent seven days in Roswell Park Cancer Institute in Buffalo New York. Went through the bone marrow biopsy and was told I have CML. Started me on sprycel 100 mg. I have one question and that is my sense of taste and smell are completely gone and I'm wondering if this is a side effect of the medication? I should have asked this when I went in for my blood test this morning but I forgot. I can't find anything listed that says that this is a side effect of this medication
Take care. Jerry.
Hi Jerry,
I think there could be a few factors at play here. A CML diagnosis is a big thing to take in, and often people find that they least their appetite and just feel off their for for a while. I know I did.
Others find dasatinib can give things a bitter or metallic taste.
Here's some further info. I can't find the full article, but at least the abstract gives some information.
https://www.sciencedirect.com/science/article/pii/S0959804917312777
David
Hi David, thanks for the article apparently they don't really no what's causing smell and taste issues yet. This started 3 days after I started taking the sprycel. When I get up in the morning I check with a bottle of Vicks VapoRub and take a big whiff and I cannot smell a darn thing and it kind of sucks that I can't taste anything. Hopefully this is just a temporary thing and it will come back. if not it's not going to be enjoyable having a male.
Take care. JERRY
Just wanted to say good luck! I also am being treated for CML with Roswell though I am on gleevec and have not had any issues with my taste and smell. Hopefully they will come back soon!
Hi, I will mention this drug to my oncologist and see if this maybe another alternative if in fact the sprycel is the culprit.
Take care. Jerry
