Hello.
My name is Ben, and Im writing aboit my son Benji. He is 11. He was diagnosed in 2016 with CML + PH, ALL. As you can imagine this is very rare. So Ive enjoyed reading on this forum for years. Just signed up today.
Heres my question/ concern to anyone going through similar tests with BCR.
Past few years ge has been on 70mg. His bcr test is very low. Or doesnt show up at all. Example.
Oct 2019 .0000
Nov 2019 .006
Dec 2019 .0000
Feb 2020 .010
March up to 80mg
April .0000
June .002
Just to clarify he started at 65lbs. Now weighs 98 lbs. Which is one of the reasons they raised dose.
Any ideas on why these swings happen? Takes pill everyday sane time. Doesnt eat 2 hours before. One hour after.
Thank you.
Ben.