My partner is late 40s, was diagnosed 11 years ago, been in MMR for 9.5 years, now on 20mg Dasatinb, BCR-ABL steady at 0.001 and is coming off D completely in May. Like everyone with CML he was added to the CEV list under the umbrella 'leukaemia' category but he hasn't shielded under the guidance of his consultant. Now he's had the letter saying shielding has been extended until March 31 and this time his employer (he's a key worker, but not in a medical setting) is saying they have to abide by it (having not bothered for all of last year). To us it seems barmy they're taking this stance, particularly as he's now had his first vaccine.
So our question is, has anyone on here with CML been removed from the CEV list at their request and if so, how?