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Ponatinib

Hi

Is anyone on Ponatinib? I'm starting this next week and would be interested in other people's experiences.

I didn't do well on Bosutinib. I had a rash after 2 days, I stopped it and restarted a week later and after a week of pills the rash was absolutely awful.

Susan

What dosage of Bosutinib were you on?  Oncs typically start CML patients on lower dosages of Bosutinib, i.e. 200mg, and then increase the dosage.  

What dosage of Ponatinib have you been prescribed.  From what I understand 15mg is usually the typical starting dosage.  

Hi

I think I was on 400mg. I've given the pills back now so can't check. It was one pill/day.

I believe I'm starting on 30mg of Ponatinib next week.

Susan

Susan, you might want to ask your onc to first start you on 15mg to gauge your reaction to the Ponatinib.  Ponatinib is not known to be an easy TKI to take.  

What is your CML history that led you to Ponatinib?