You are here

I can’t take the Pain anymore and I am sick of being ignored

Categories:

I got diagnosed in 2018 and received amazing care in Canada, when I explained I was fighting a lot of pain they immediately got me in with a pain team and gave me varying strengths of pain killers depending on how I felt, then I came here for work and I fight every day to get treatment, I am at the point of stopping my treatment because I just can’t take it anymore 

I also have multiple sclerosis so it’s a bit complicated but if I ask for pain meds then I am treated like an addict, in the states and Canada they treat your pain, I don’t understand why it’s so difficult to get care.

does anyone else suffer severe pain? 

Scout3124, I'm sorry to hear you are in such pain. Can you give a little more info - what TKI are you taking, how well is it working for you? I think another question is where are you located now? That may make a huge difference in the care available to you. The reason I ask this is because maybe you could be taking another TKI that would be better for you. The US has a terrible addiction problem and many people give many excuses to get drugs. It doesn't bode well for those who truly need the pain medications. How about the doctor you are seeing for MS? Can they be any help in navigating the system? We also have pain clinics in the US, have you been directed to one?

Pat

I am in London on sprycel, I understand the addiction issue but if a patient walks into your office with cancer and MS and says, I suffer severe pain and I need help, here are the contact information for my pain team in Canada or the States and though I do need opioids I have been on them for years and I don’t need to keep climbing up I understand how to control them or I would be a full blown heroin addict by now and I have never taken anything stronger than fentanyl once because I had major surgery and died on the table for a short time but I do need these medications sonI can live my life and not lay in bed all day in excruciating pain.

and that’s what is happening here, I can’t work, I can’t care for myself I can’t do anything and after my appointment today I fired every single doctor but my cancer doc because she has an incredible team at Hammersmith and they do everything they can for me.

I am now trying to get back to the states, we have nothing and it’s destroying my daughter because she has to care for me and I miss having a life