CML - Sprycel - six years - great levels and close to remission Live in the US.
Having a lot of issues lately with edema in lower legs swollen ankles and feel chills. But also have low sodium which seems to be a side effect of Sprycel. As you can imagine I don’t know whether to drink electrolytes to help sodium or does that end up making me hold water. Been saying this to my doctors for a while that occasionally I battled these issues at times and got through it. Never had a situation where both are bad. Just got over a respiratory infection and not sure that is tied in at all. Went to hospital yesterday and they ran a bunch of tests and nothing bad was found but I never got to see a doctor as I waited 7 hours in a waiting room until 3:30 am and then I left. As you can imagine and may have heard hospitals are a mess here due with Covid flu and respiratory problems. Am curious if anyone has encountered these issues apart or together. Any suggestions or hints for attacking naturally. I do use Gatorade at times and it helps sodium. But I am not sure if it worsens water in my body. My oncologist gave me water pills for edema once and I took one today. But my family doctor said to be careful as it makes sodium worse. Was told by family doctor that low sodium is extremely dangerous and it can cause seizures, coma and even death. Quite a dilemma as some of might be aware
If anyone has encountered this would love to hear as I find more answers sometimes on this forum than from doctors. You are a terrific group and doing a great job. Keep up the good work
Thank you
Yianni
