I am posting this on behalf of my son:
My name is James and I am a high school student working on a research-based project focused on how parents talked to their children about their diagnosis. After my mom was diagnosed with CML, I realized how frightening and confusing the word “cancer” can be, especially when the illness is chronic and long-term. Many resources are written for adults or very young children, but there is far less guidance for families with tweens and teenagers.
As part of my research, I am hoping to hear from parents living with CML who would be willing to complete a short, anonymous questionnaire your experience telling your own children. The questionnaire takes about 10–15 minutes. If you are willing to participate or would like more information, please send a DM, and I will share the questionnaire link. I would be incredibly grateful for your help, and I hope this project can eventually support other families navigating CML.
I am providing a link to a google doc. If you are unable to access this link and are interested in completing the survey - please reach out and a PDF will be provided.