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CML in children

Hi,
I'm new here and, like everyone in the initial stages, still trying to take in this new world.
I have a 13 year old boy who was diagnosed with CML within the last month. It was found as the result of a routine medical test - the enlarged spleen setting off the alarm bells. So far I haven't come across any other children with CML and I understand it is very rare in children. It would be great to hear from anyone else going through what we are, or anyone who's been there before.
We are immersed in hospital visits and blood tests and trying to find out what kind of normality to expect. Docs are talking about BMT next year....
Would love to hear from you!
Kestrel