On Sunday it will be 10 years since I was diagnosed with CML, its an aniversary that at the start I was led to believe I would never make and I am thankful that I have. My QOL has in the main been good with several highs and lows along the way but I have never managed to reach zero. My last bone marrow earlier this year still showed 100%+ve. I am starting to get fed up now and side effects that have been iritating me for years are starting to bug me, some are getting worse and new ones are appearing (probably due to an increase in dose)I know it isn't true but it seems like everyone else gets to zero by fish in a short space of time and I have been left behind. Maybe my cml is just as stubbon as me. Most people think I handle it will, there are still others who don't know and generally it hasn't stopped me doing anything I've really wanted to do but it's always there lurking in the background.
Karen