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CML centres of excellence

Happy New Year everyone, I hope 2007 will be a successful year for us all on our CML paths.

I have been wondering where the centres of excellence are for treating CML in the UK. I have gathered that Hammersmith is highly regarded and I have heard Steve O'Brien's name mentioned frequently - he is at Newcastle?

At present I am quite happy with my consultant, my treatment seems to be progressing smoothly and I dont feel the need for a second opinion - but it would be nice to know where the good places are just in case the situation changes in the future.

Thanks.

Janet

hi janet,
certainly Hammersmith which is also good for transplant and....
in my personal opinion and not in any order of preference :

RVI Newcastle (O'brien)
Leeds (Smith)
Queen Elizabeth,Birmingham (Craddock...
another good transplant facility)

The Royal, Liverpool (Clarke)
Manchester (Lucas)
Bristol (Marks)
Glasgow (Holyoake)

i am sure others will have suggestions if i have missed any...
best wishes,

sandy C ;o)

Hi Sandy

Thank you for posting your list - it is very useful. I am being treated in Cardiff, which I see is NOT there :-). I had wondered, Cardiff is a big university hospital but there are quite a few of them about and nowhere can be excellent at everything!

Just out of interest, is anyone else here being treated in Cardiff? It would be good to compare notes sometime.

Take care all

Janet

Hi Janet,

My wife is being treated by the Haematologists at Cardiff and has been for the last 3 years and 3 months.
Generally, we are happy with the level of care.
If you have any issues, maybe you'd like to e-mail me:

d.p.cooke@tiscali.co.uk

Paul

Thanks Paul for your email address - I will email you if that is OK. I dont have any issues at all as I said in my first post, I think the care I am getting is great, but it would be good to be in contact with someone else with CML who is living locally.

Janet

Hi Paul - I have just tried to email you but for some unknown reason Hotmail decided not to send to your tiscali address. This has happened before when hotmail took a dislike to NTL for a bit! :-) I have used another email address with Orange - could you let me know if you get it please? thanks, Janet

Hi Janet,

You could try my alternative e-mail address d.p.cooke@btinternet.com

Paul

Thanks for that Paul, I'll try that one as well ....

success I think this time, hotmail purred gently instead!

Janet