Hi Freeda,
Skip Duffie from Halifax, Nova Scotia, Canada has had CML for 27 years.
This is quite remarkable because he still hasn't made it into the Zero Club. He is currently on the AMN107 trial. You can read his story at http://easyskip.tripod.com/
The oldest member in the Zero Club (#1) is Marty Gartenberg. I gave him this honor when I started the Zero Club on March 27, 2001. Marty is a BMT survivor and was so very helpful to me at the time I was struggling to find a clinical trial for STI571.
The date, March 27, 2001 is significant for me. This is the day that I took my first dose of STI571 (now called Gleevec). I started counting every person I could find on the CML lists that achieved CCR. In September 2001 I became # 102 in my own Zero Club.
Zavie
Zavie Miller (age 69)
Ottawa, Canada, dxd AUG/99
INF OCT/99 to FEB/00, CHF
Gleevec since MAR/27/01 (400 mg)
CCR SEP/01. #102 in Zero Club
2.8 log reduction Sep/05
3.0 log reduction Jan/06
> 4 log reduction Nov/06
zmiller@sympatico.ca