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Disability Living Allowance

Hi everone, I wonder if any one can help me with this, I have tried to claim disability living allowance for Becky and have been turned down. Just wondered if anyone has had this happen to them and appealed and won. Thanks in advance, Love Dawn xxx

Hi Dawn
You should get the support nurse or Becky's doctor to fill in the form. You should now appeal and get supporting reports from the doctor and/or your GP. If the GP cooperates it usually is not a problem.
Goodluck.
Elizabeth

Hi Elizabeth, thank you for your information. I am going to contact our paediatric macmillan nurse to see if she can support me in my appeal. The DLA said that I do not qualify because Becky does not have any more care than a typical 15 year old. Thanks again, love Dawn xxx

Hi Dawn,
We looked into getting DLA when Rio was first diagnosed, but as his health improved so much on imatinib it seemed unlikely that we would qualify. The Clic Sargent Social Worker in the Hosp thought it very unlikely too, but said that it would definitely be allowed if we applied when he was due to have a BMT. Will be interested to hear how you get on if you do appeal, as we decided just to let it go for now. Love, kestrel xx

thanks Kestrel, I am appealing because Becky has got to have some fertility treatment in the near future to help her concieve when she is older. I do know that the patient who has IVF has to have daily injections for a month before the egg harvesting and I think I may have to do them. If this is the case I may be able to qualify for something. I will let you know what our macmillan nurse says to whether its worth appealing over. Love Dawn xxx

susan dickerson
Hi Dawn I've had cml for 7yrs no DLA for first 2yrs but now I do get it thanks to Bradford Cancer Support Centre and my consultant,I get the Mobility part due to the fact that I soon get fatique,cramps,muscle pain some days are ok but on a day where I am suffering its not very easy and takes me all my time to get out of bed added to the fact that the fluid retention that we suffer with gleevic and the amount that we have to drink or water tablets that some of us are on makes us need a loo quickly. So I would talk to your consultant and go to macmillan nurse and certainly to a cancer support centre (benefits advisor)I'll bet there are quite a few cmlers not getting any benefits because they feel ok on some days but terrible days and some who don't and cope really well hope this helps good luck sue

Hi Sue, I totally agree with you about having good and bad days. Becky does have cramps I think but she just gets on with it and does not say much cos she knows i worry! The fact is that we are being fobbed off. The care element says that she must be getting more care than a typical 15 year old off me, and she is. I am up in the night with her when she feels sick etc. I have put the tiredness and the fact that I have to remind her to drink plenty of fluids. None of this is what a typical 15 year old has. I will let everyone know tomorrow the outcome. Thank you all for your advice. Love Dawn xxx

hi dawn, my husband was turned down for this at first but i appealed,explaining the side effects that he was suffering from, and i won the appeal.

Hi Belinda, I am going to write a letter to appeal tomorrow. I will let eveyone know the outcome when I find out. Thanks for replying to my thread everyone. Love Dawn xxx

Hi Everyone - a subject in itself, one could write a book on the intricacies of DLA. Firstly it does seem to be post coded, I applied in 1997 but was denied, as did over 500 applicants in the Reading area, I applied under Special Rules, as my prognosis at that time was grim, and after continuing the fight against the DLA in Blackpool I did win but it took 54 weeks, so much for getting help within 6 weeks. Never give up, they will try every trick in the book to catch you out over your application, even as far as ringing you in hospital whilst you are under going chemo procedures (as I was) and asking you how you feel today. I could bore you all for ever on this subject, but the rule is do not give up, keep at them no matter what, remember you are entitled to this help. If I am able to help anyone, then do please e-mail me and I will do my best to assist.
Have fun and keep smiling
Keith

Hi Keith, Thank you for your response. I think that it is a fact that sometimes they do not want to give you DLA. I would have given in but then I thought that I am entitled like you said. I have appealed and they have sent me a letter saying that they have received it. I wait with baited breath to see if they will change their minds due to the changes in Becky`s circumstances. Like you said you have to never give up but I think they make it so difficult they try and make people give up. Thanks again keith for your support. Love Dawn xxx