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0.0000 PCR

Hi Everyone.

Just back from Kings where I was meant to be discussing what new drug was a possibility as I have had rising PCR for 14 months. Latest result is 0.0000 even the Docs can't explain it. So another empty arm, and 9 loads of blood. Next PCR results expected in 2 weeks.

I have got a very low potassium level, and there is a query as to if this is the cause of my terrible fatigue. So I start on a supplement today, fingers crossed it helps, or I might turn into pen van winkle.
Healing thoughts to all
Pennie

Well Pennie
This makes it all worth while ! After all this time to see all those zeros must have brought a big smile to yours and Bill's face !
Well done and hope the potassium helps the fatigue. Keep eating those bananas !
Hope to see you in Edinburgh.
Much love
Elizabeth x

dear Pennie, this is truly wonderful news. i know you are trying to work out why and how this has happended after a very bouncey trend in your pcr's.. hopefully this will be the new trend for the future. i am really pleased.
thankyou also for your lovely words about living with CML in the thread below.
love to you and Bill,
sandy C ;o)

Congratulations Pennie,

You really deserve to have all those zero's!! after your bouncy year with PCR's both Steven & I are so happy for you.

Your post is so positive about life with CML & so true to many of us Steven is now waiting for his extra zero he is 2 years behind you so it just goes to show you can get there in the end.

Hope you & Bill are enjoying life in London now & really hope all your problems with your teeth have settled down.

We hope to see you in Edinburgh.

Love
Carol & Steven
XX

Hi Pennie, Just wanted to say what great news it is that your pcr level is 0.0000!!!

Hope the supplements help with the tiredness.

Much love

Jayne xx

Great news Penny Im so glad for you.
Yvonne