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Side effects database

There are many posts on here asking for advice on coping with side-effects, often ones which have been covered before.

I have just posted on one treatment that worked for my rash. I hope it will be useful for someone else but, in time, it will be lost in the depths of the Forum.

How about a separate sub-section on side-effects, perhaps with sub-headings, such as “Rash” or “Cramps”, where we could post our findings on a “try this, it worked for me” basis.

We are all still exploring our reactions to this disease. An easily accessible database of what works for some could be useful to all.

John

Hi John,
yes this is a good idea and i have been discussing this with another member of this group. your idea of a separate section with distinct headings is probably an easy way to tackle the problem.
i will talk to our technical guy and see if we can easily collate the information as you suggest.

Sandy C ;o)

Hi John and Sandy
I think this is a brilliant idea. Having been involved since Brian was diagnosed in Feb 07 there is so much info that we need to source and if it could be itemised into sections it would be so useful. We are really struggling with an extreme rash form. Have been out and bought doublebase - thank you for this information - today to see if it helps. However Brian is attending the hospital today for bone marrow check and hopefully some help with rash, they are talking about dasatanib, I just hope we are not swapping one bad side effect for another with another strong drug. We are not ungrateful for all the wonderful opportunities open to us but just trying to keep things in perspective.

Love to all

christine murphy