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Donor Match

Hello everyone,

I wanted to share some good news, and give a little hope to those who struggle to find a donor should they need one. I was diagnosed over 4 years ago, and with a rare tissue type, was told that no donor could be found. I have one brother, and he was very disappointed that he is not a match.

My response to Glivec although up and down has been good, but I can't seem to get any lower than a PCR of 0.109. I now go to the Hammersmith, and I discuss with them the other drug options, although I continue on 600 mg Glivec. I do suffer toilet problems with it, and am now trying a split dose of 300 mg morning & evening.

The main reason for my post is that I went to the Hammersmith this Wednesday, and to my amazement discovered that they have found a good donor match should I need it in the future. I don't know all the details, but had to supply more blood for closer matching I think. It was a day that I will remember!

Anyway, I sincerely hope that others out there have the same luck. Very best wishes,

Phil.

Excellent news, my wife had her transplant 5 months ago and is doing womderful. Nice to know you have another option in the bank, good luck for the future.

We are holding the first meeting of the Hammersmith Leukaemia Patient Support Group on Saturday 16th February at the Catherine Lewis Centre between 10am & 1pm. Please feel free to drop in between these times to meet us. We hope that you will be able to attend. This is a very informal meeting and is for all Leukaemia patients/carers to meet up with others who know what it is like to live with leukaemia.

This meeting is open to everyone not just Hammersmith patients or anyone who is in the London area for the weekend or any other weekend when we hold our meetings.

We hope to hold meetings every two months on a Saturday morning.If there is demand we will meet every four weeks. This is your group and we will very much tailor the group to the needs of those attending.

This group will be run in collaboration with the Hammersmith Support Nurses and support of the Hammersmith Team.

Refreshments will be provided. The date of the next meeting will be posted after we meet on the 16th February.

We hope to see many of you on the 16th February.

Look forward to seeing you there.

Elizabeth Rees & Carol Davies

As the group grows we will be having guest speakers

hi Paul, i am really pleased to hear that your wife continues to do well.
best wishes to you both,
Sandy ;o)

hi Phil, this is really good news and i am sure you are feeling confident now you have another option, even if you never use it!Sandy ;o)

JUST WANTED TO SAY THAT GARY, MY HUSBAND WITH CML, DX JULY 2004 HAS ALSO BEEN TOLD OF A 10/10 MATCH FROM THE THE USA. SHE TOO IS PROVIDING MORE SAMPLES ALTHOUGH GARY IS RESPONDING VERY WELL ON DASATANIB SINCE CHANGING TO IT IN OCT 2007. LIKE YOU, ITS NICE TO KNOW THERE IS SOMEONE OUT THERE IN THE PIPELINE. RACHEL

Just wanted to say thats great news. Thats half the battle, finding a suitable donor.

Much love to you.

Jayne

Sandy just an update. Although it seems more than 5 month since transplant the time we thought would never arrive finally has,the Dr said Sharon can go back to work in 2 weeks time.We cannot believe it. I would also like to say to the people and familys who are about to undergo a transplant that there is light at the end of every tunnel and once again thankyou all for the posts and support I feel ive recieved from here.