Val was dx last January, the day after our youngest daughter's 21st birthday, following a blood test for an unrelated viral infection, with an wbc count of 30, PH+ of 84% and 146,000 transcripts. We were told by the doctor we were incredible lucky, but at the time I can't honestly say we agreed! After a short (10 days) time on hydroxycarbamide, Val has been on 400mg Glivec since.
Her wbc was back to normal within 4 weeks, whilst May saw her PH+ down to 740.
June saw Val being photographed for a new CML brochure for the drugs company that manufacture Glivec.
This Jan saw the latest results:
wbc normal; PH+ 0.19% and 54 transcripts.
Yes there has been side effects of the tablets, yes there have been bright and dark days but our approach has been that CML is along for the ride if it can stand the pace and we have done our utmost to continue as normal.
The forum and website has been a great source of information to us and long may it continue to be.
Best wishes
Phil and Val Greenwood