hi my name is richard I was diagnosed with chronic myeloid leukaemia in december 2007.I have been on Glivec 400mg since that fatefull day. it would be nice to be in contact with others like me in milton keynes so drop me a line it would be great to meet up maybe once a month for a drink and a chat
richard
richard.bolam@btinternet.com
Hi Richard,
I would just like to say that I think it is really good idea to connect with others cml patients, whether face to face or through forums like this.
Are you treated at a specialist clinic where there are other CML patients? If so it might be worth trying to set up a support group based at your clinic. Otherwise you could go to the Hammersmith Hospital support group which is for all leukaemia patients not just for those treated at Hammersmith. ... see poster in post above for details of their next meeting.
Meanwhile, welcome to this forum, I hope you will continue to join in our discussions.
Best wishes,
Sandy
hi richard, my husband mark was diagnosed with cml in july 2006, he was 40 at the time. we have lived in mk all our lives. mark is treated at mk hospital in the mc millan unit. up to a month ago his oncologist was a dr moir, but unfortunately he has just retired, so we are waiting to see who is going to take over on a full time basis. we attend on a tuesday clinic everyone is extremely nice & helpfull. i do know all mark,s test,s are sent to hammersmith hospital. i know it is a shock as if your like my husband he,s never been a person who is sick all the time, doesnt drink or smoke so you do think y me? but you just think well i cant change things and you read so many positve things on this site that you just get on with life. hope that you keep getting good results with the gleevac, just sometimes the side effects are a pain!!!
hello to the lady above and mark, i thought i was reading about my self there ! Dr Moir was the guy who looked after me until he went, now i am being seen by some other guy who i just dont click with. find me there on tuesdays usualy around 9am. i got involved in the recent marrow donor drive at the mac unit did you drag anyone down there ?
how is mark ? i was dx a week or so before christmas not nice, all seems well i am on 400mg of glivec but i am so tired comes in waves some days i am well up to the challenge others i just flake out when i get home. lucky for me my employer is very understanding so i can get away with the odd late start :)luckly for me thats all that seems to be the only side affect or symptom indeed thats what allerted me to somthing being wrong with me as i was one for gettting up at 6 every day
drop me a line richard.bolam@btinternet.com lets get together for a drink and a chat ?
richard in old stratford
hi richard, hope you are doing ok? mark is doing well on his meds, he is a bit worried now dr moir has left because like you he doesnt really click with his new doctor, & it worries him because this doc leaves him 6 weeks between visits not 4. he doesnt have the problem with work any more as couldnt cope with it so his company pensioned him off with an early retirement package. this site is a god send for me as im sure it will be for you. i,ll try 2 drop you an email when i get the time lol you know how busy life can be!!!!! take care n hope your results keep being good.
hi richard we both hope your still doing ok. bit confused about mark wwhen he went last tues he saw a lady doc who seemed concerned that his blood counts werent doing what they should so she was getting in touch with hammersmith to see about changing his meds up till now dr moir seemed pleased with his counts so i dont really know whats going on still weve got 2 go back in 2 weeks so im sure well get some answers. good news about the new docs tho. take care.
