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platelets do they work ?

Whilst many of us ladies on gleevic have suffered with heavy periods, some consultants are saying its due to the gleevic along with early menopause symtoms my consultant says that it could be the platelets that are causing heavy bleeding and that even with a stable and great platelet count of around 243 for the last 3 years that the platelets might not be working properly. This is not the first time she has told me this and today my heamotolgy nurse told me the same. Has anyone else heard of this? I do think it may be true in a way, it could explain why many of us still bruise easily and don't heal very quickly if we cut ourselves. So can anyone else find info on whether our platelets are working properly or not. If so should we all be aware of this male or female I've only been told about this due to womens problems but does it affect us all on gleevic. Advise and Views on this subject thanks
Any dates or location of CML SEMINAR yet
sue d

Sue D and Sandy
Requesting your authorisation

Can I post this to our talkbackchat group Leukamia group in Australia. Will not add your name. Just the content.
Heaps of women are having hormone problems and my personal experience is that I nearly bled out and had to have an emergency hysterectomy. Specialists & Gyno Surgeon thought it was a combination of CML and Glivec but never said anything about platelets. I also get heaps of blood blisters.
Maybe able to get further feedback.

Sue H(Australia)

To Post

Whilst many of us ladies on gleevic have suffered with heavy periods, some consultants are saying its due to the gleevic along with early menopause symtoms my consultant says that it could be the platelets that are causing heavy bleeding and that even with a stable and great platelet count of around 243 for the last 3 years that the platelets might not be working properly. This is not the first time she has told me this and today my heamotolgy nurse told me the same. Has anyone else heard of this? I do think it may be true in a way, it could explain why many of us still bruise easily and don't heal very quickly if we cut ourselves. So can anyone else find info on whether our platelets are working properly or not. If so should we all be aware of this male or female I've only been told about this due to womens problems but does it affect us all on gleevic.

Hi Sue,
I have no problem with you posting the above on your site. It is an important topic and needs to be addressed.
I will ask my consultant for his views and experience.

best wishes,
Sandy

susan dickerson In response to posting this on your site the sooner we get some answers to this big problem the better and if all the ladies having similar problems can pursue this with their consultants then we may get somewhere soon, also if any males are having any problems with bruising or slow healing after cuts etc then please let us try get more info from the powers that be. look forward to hear news on this subject soon thanks sue d

susan dickerson In response to posting this on your site the sooner we get some answers to this big problem the better and if all the ladies having similar problems can pursue this with their consultants then we may get somewhere soon, also if any males are having any problems with bruising or slow healing after cuts etc then please let us try get more info from the powers that be. look forward to hear news on this subject soon thanks sue d

Thanks for authorisation

Will paraphrase and see if we can get heaps of further responses.

I posted One for the Gals - and the responses came out fo the woodwork - so it is an issue for all of us.

Sandy
Further information on hormones and combination of platelets and impact from glivec would be extremely useful

Suggestion
If any of the information is a useful tool for yourself
then print-out and take to your specialist for his comments and maybe further research

Thanks
Sue h

I spoke with my consultant about this has is not aware that this is a problem with Glivec, although he says it is a problem with cml (platelet function that is). He suggested that a platelet function test might be a good idea but you would need to ask for this as it is not a routine test.

Sandy