You are here

yorkshire region cml support group

Hi to everyone, just a memo to let everyone know that the first yorkshire region cml support group is finally going to take place on Monday 6th July 2009 at ST James Hospital Leeds 7pm until 9pm. Dr Gramme Smith will be attending and most likely opening the meeting, also Alison Chatten, Helen Johnson along with some other clinical haemotology nurses will be present. This group has taken about 2 to 3 years to get started and will benefit those of us with cml as well as any family members or who are involved in our cml journey. The meeting is for anyone who lives in the yorkshire region and is hoped to become a regualar event similar to the support group that is held at Hammersmith. Please anyone who can come along and help to launch this first meeting. If you would like any more information about this meeting please e-mail Alison.Chatten@leedsth.nhs.uk.
I will ask Alison to put the date etc on this site and I myself will do another posting nearer the date. Myself and my husband Robert will be attending the meeting and will be travelling from Queensbury BD13 Hope to have some people interested and able to attend sue dickerson

Dear Sue, this is really good news. I am so glad this is finally happening and I am sure it will be a big success. If I am free on the 6th July I hope to join you, if that's OK with you, I will let you know nearer the time.

Best wishes,
Sandy

Hi, this is really good news, i,m from Southowram,Halifax and a CML patient, DX in December 08, I had my first visit to the Leeds institute of Oncology a couple of weeks ago. Dr Graeme Smith is my Haemotologist over there, i,m also at Calderdale royal but seeing Dr Smith every 3 months to keep an eye on BCR/ABL and PCR tests.
There is also a lady who lives not half a mile from me also with CML, so we will be making the meetings regular for sure.She found out herself only a few weeks later than me. I travelled down to Hammersmith to the last support group meeting, and met some lovely people mainly from London area though.
I would also like to donate something to the meetings, but i am unsure on how these things are funded etc.
I would really like it to go to help a CML organisation, Please could you let me know how to go about this Sandy.
My e mail is christopher105@hotmail.com
So please dont hesitate Sue or Sandy to get in touch.
Chris.